@marionq I have a keen sense of smell. So I know how you feel. Once I smelled gas outside, we called the company and a man with monitor came and gave the all clear. I insisted I could smell gas. He took the monitor further up the road and and to his astonishment he found a drain full of gas. I have missed my calling, perhaps I was a hound dog in a previous life
I had an assessment for a respite care, almost 100% of my husband's income was to be given as a contribution the only thing set against it was council tax. As it was no respite was forthcoming at least not yet, I have been told I should get a direct payment. As it was I selfunded and treated like a holiday for both. I can not repeat this.
What I fail to grasp is why the cost is not taken into consideration as you said the extra costs of care at home are very costly. My husband needs special food, extra heating, washing and irregular supplies of pull ups.
Even volunteer drivers cost, we have a lot of hospital visits etc. Two mornings a week at a centre cost, I shop carefully on line but it nnot always the cheapest way as many have a delivery charge. It goes on and on as you know.
It is sad to see our husbands become so week. Mind struggles at the moment to realise that hot weather means it is not safe to leave windows and doors open at night. He is right it would cool the house, but hardly safe.
He was so security conscious at one time.