Hi Intelnublett.... wished I knew your name...
I had to come back after reading your post.
However, I still get the email popping up, which I read, I then I read yours. This got my interest: ‘starting to feel it is getting worse.’
I’ve been looking for others, with dementia, that know they have it and obviously you do!
I have Neuralgic Amyotrophy, Epilepsy and now Dementia. However, I think this is normal…. my path to death. It may be different to others, but it is mine.
Out of all the diagnosis, dementia was the one that got to me most! Since then I have become obsessed with finding out all I can about it and there are some amazing things I’ve discovered… Good and Bad!
Number One. They do not know what causes it, they know the symptoms, and they do not have any clue of how to treat it!
With this in mind… it is easy to see that anyone with such a diagnosis would give up; why bother, we know what is coming!
But, I think this is the same for everyone… many people are terrified of the the thought of death, but as we all know, it is the one certainty of life.
I’m not frighten of death at all, I’m terrified of dying! I want to go quick and quiet, without pain, or fear. I guess this is the same for everyone!?
Life ends in one of three ways, our organs fail, our brain fails, both by old age, or illness, or by uncontrollable circumstance… like car accident.
If we have no illnesses and no accident, then are our organs and/or brain would fail as they degenerate. I believe that it is the rate of degeneration and the time it takes that is a distinguishing factor between me and the person next door.
Hopefully, we live to a ripe old age and then are bodies come to their end and we leave this mortal coil; quick, quiet and peaceful. Well we can dream!
However, I think dementia is when these final moments don’t last for a relatively short time, but are excruciatingly extended over years and years.
It is the reason for this happening that fascinates me and research strongly suggest that this is not inevitable. Although genetics does play a part, it is thought that lifestyle is a major factor.
It is this I now believe. Just one example; Exercise is paramount is staving off mental and physical decline throughout life. I use a wheelchair, so I bought a special wheelchair that has push handles and now I go for miles. The first half hour is hard, but then I feel alive, I’m in my own little world, independent and free, but most of all feeling amazing and this is impacting on my life after exercising.
For me the diagnoses of Dementia had defined me. Every day was a Dementia Day. I was down, with no future and so did nothing, just sat and waited, but not anymore.
I have hope and a goal and it’s called life. I live it to the full and do whatever I can, whenever I can!
The latest research, carried out at Oxford, has identified a way to determine a person has Dementia, before showing any signs… Why! Who would want to know!? The reason… because lifestyle can change the outcome. It is not a death sentence.
It is a wake up call that everyone needs to hear.
So when the doctor says, ‘It’s dementia,’ it does not mean it’s the end… It means live!
Don’t wait till too many brain cells have died and you have gone too far into the darkness to ever come back.
Do spend time here... there are some nice people here, but don't make it your life.
Get out, enjoy life and Live! Live! Live!
PS. Sorry…. I do tend to go on a bit!