My father thinks my mother has severe dementia

gomyone

New member
May 21, 2019
2
0
My siblings and I are really in need of help. Our mother is 70 years old but looks like she is 40 (think JLo!). She continues to work part-time doing hairdressing in her home and because of her career, her appearance is always stunning.

Over the past year, our mother has had some memory lapses and at times, has also become disengaged in conversations, particularly in crowded situations. She prefers one on one conversation and seems fine engaging that way. However, about a year ago her family doctor suggested she see a geriatric specialist because she had stopped (forgot?) to take one of the medications (for cholesterol) that she must have since having a pacemaker put in about 10 years ago.

My recently retired 75 year old father also urged my mother to see the specialist because he believed my mother's forgetfulness was the result of dementia. At my father's urging the specialist tested my mother and concluded she had Stage 2 (very mild decline). My father was in the room when my mother was tested so I know she felt anxious about that. As such, I also took my mother to see a psychologist who checked her out alone without anyone else in the room. The psychologists assessment was that she couldn't see anything wrong with my mother except for having occasional "senior's moments". The psychologist also said that she "wished she would look as good as my mother at 70".

After we did this, we told my father and he didn't believe it. He was certain that my mother's cognitive abilities were fading fast. In fact, at Christmas, my father broke down crying saying that it has been "very hard for him" to look after my mother and that he has to do "everything in their household" cause my mother doesn't bother. Just last week, he wrote my siblings an email suggesting my mother's dementia was getting worse because:

1 ... not a day goes by without me asking what’s for dinner
2... mom has not TOUCHED the central vac in months
3.... she used to go to Costco once a week for the last 20 years but has not been there for the last 6 months. Today I suggested we go and drove her car. I asked her which way to go . She could not remember
4... we make a list together b4 she goes shopping 99% of the time she misses 4 or 5 items - her answer was“ bc the store did not have it“ and then she buys stuff that we do not need bc “you could not beat the price “
5...her hairdressing business has dropped more than 50% . Some of her clients are ill now or cannot drive . However, there are about 4 regular who for years used to come every week who do not come any more .Not sure how many others stopped coming. Times and days are screwed up . Always the clients fault.
In between clients she just walks up and down the hallway
6...she stopped going to the gym about 6 months ago so I finally axed her subscription 2 months ago
7... sometimes she cannot remember how to operate the tv remote

We are very concerned as my Dad is adamant that my mom has a problem that is going to put him in an early grave. He is very stressed. While my mom's memory is not sharp, my siblings and I don't think she is on the verge of Alzheimer despite what my Dad keeps saying.

Any thoughts or comments would be appreciated!
 

karaokePete

Registered User
Jul 23, 2017
6,568
0
N Ireland
Hello @gomyone, and welcome to the forum. You have come to the right place for information and support.

I empathise with how your father feels as I have been down the same road with my wife, who has been diagnosed.

The best thing to do in this situation is have another chat with the GP. Many treatable conditions, such as depression, stress, thyroid problems, vitamin deficiencies etc., can cause dementia like symptoms so it's important to have a check-up. Please don't cause additional stress by jumping to the immediate conclusion that it's dementia. On the other hand, if it is dementia then a diagnosis may open up support for you.

Here is a link to a Society Fact sheet about the diagnosis issue. Just click the second line to read or print the document

Assessment and diagnosis (426)
PDF printable version

If you wish to do a bit more reading you can find the AS Publications list with the following link

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list
 

canary

Registered User
Feb 25, 2014
25,049
0
South coast
Im in a similar position to your dad.
My OH can no longer do anything either. He used to do a lot of gardening, but now cannot tell the difference between a plant and a weed, he used to do all the DIY around the house, but 2 years ago he could not work out which brush to use to paint a wall and now he does nothing. He used to cook the dinner when I was at work, but now he does not know how to boil potatoes. He can no longer use his mobile and the landline often defeats him.

If you tell him 2 things he will only remember one of them; he cant remember conversations or anything that he did last week. I have just discovered that he can no longer remember how to shower and often does not shave or clean his teeth. He cannot sort out his own medication and double-dosed himself before I caught on. He has no idea about social conventions and will do/say things that are completely out of order. Most of the time he is completely apathetic, but will then blow up over nothing.

Unfortunately, when he goes to the doctor there is a sudden transformation - he is chatty and engaged, coming over as completely normal. I now know that this phenomenon is well known on here and is referred to as "host/hostess mode" and is something that they can only keep up for short lengths of time. Just long enough for a doctors consultation :rolleyes:
He will also ace all the tests - because his short term memory is still good and he is well orientated in the here and now.

So, the only diagnosis we have is Mild Cognitive Impairment and the doctors think I am making it all up.

May I suggest that you go and stay with your mum - perhaps your dad could have a weekend away to give him a break - so you can see for yourself whether what your dad is saying is true or not. It might be an eye-opener.
 

Bod

Registered User
Aug 30, 2013
1,971
0
Classic Hostess mode.
Dad lives with her long enough to see the truth, daily.
Others only see her for short periods, during which she can put on a "front" and appear perfectly normal. An act which can only be kept up for short periods.
Dad needs support, and believing, getting her Dr to see the real condition, is the difficultly.

Bod
 

Beate

Registered User
May 21, 2014
12,179
0
London
Please believe your Dad. He would not be making this up, and it's the tragedy of many carers that they aren't believed because some patients can put on such a good "all is well" front. Tragically, there are a lot of consultants that cannot see through that.
 

gomyone

New member
May 21, 2019
2
0
Thank you so far the responses. My siblings and I have spent some time with my mother and while her memory isn't perfect we have not seen the same deterioration in her mental ability as my father suggests.

Whenever I speak to my mother, she just says that she doesn't want to vacuum or go on "big grocery shops" anymore because they don't need to now that they are empty nesters. (They still live in their big 4 bedroom family house and its just the two of them.) To me, these things that are irking my father just seem to be things that someone her age can't be bothered doing anymore.

She does still cook, but her cooking isn't as "perfect" as when we were kids. I can partly understand that, and if anything, she may not be taking the same care to be a perfect Martha Stewart. This frustrates my father as he has always been a "perfectionist" and "very routine oriented" Now that he is retired, he is 24/7 in my mom's space which I believe is causing her to "withdraw" because she is not living up to his expectations.

That's partly why I think my mom might have some sort of depression rather than dementia. But I can't say for sure. My sister is actually going to be spending two days a week with my mom one-on-one and spend some focused time with her (without my Dad being around). We'll see what happens...but I really don't want to jump into the conclusion of dementia when it might not be.
 
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Beate

Registered User
May 21, 2014
12,179
0
London
No one is asking you to jump to conclusions, just to be open to the possibility of your father being right. He is the one who is with her every day. Even if you stay for a couple of days, she could be keeping up hostess mode with you.

It is entirely possible that her excuses are just that - excuses. Supermarkets are big noisy places, and people with dementia can get confused going there, finding their way round and remembering what they wanted to buy. Dementia can go hand in and with depression, when abilities decline and memory falters.

It's good of your sister to give your Dad some respite. Looking after someone on your own is never easy. I hope you can get her checked out properly.
 

El31

Registered User
May 21, 2018
64
0
Oh wow this sounds exactly like my mum. She is 69 and my dad 76. Over past 4 years she has changed dramatically. Neglecting herself, baths religiously at 4pm daily but wears same clothes although has obsessions over buying clothes, she forgets her bag in Sainsbury’s most weeks and visits the shop about 5 times a day to get random things she thinks of.. at the moment her obsessions are going shopping, and how many times she poos a day.. it’s all very odd. She also repeats herself constantly and will chant what she’s doing, she told me 10 times in a row she was going for a bath the other day. She will also go to bed at 6pm and then get up at 10pm and then go back down, she will just stand and stare at nothing and when you talk to her she just says ‘ok then’ or something else which sounds like she’s brushing you off. She in inpatient with my son , telling him if he doesn’t stop she will smack him, she doesn’t cook food properly... and even with all these symptoms she thinks she is fine. She had a brain scan which showed small vessel damage and they also diagnosed a mild cognitive impairment.
Sounds like something is definitely going on with your mum too, I’m so sorry.. it’s bloody tough and draining when someone you love so much changes before your eyes, and often not in to someone you like. I know my reply prob isn’t very helpful but I just want to let you know that you’re not alone xxx
 

El31

Registered User
May 21, 2018
64
0
Sorry I clearly didn’t read your post fully.. do you see your mum often? My brother thought that mum was absolutely fine, he’s a high flier in the city so only sees her once a month, where as I’m every week, and will often stay over there. My dad used to get stressed but now he just laughs it off.. does he have much support ?
 

MrsDoyle

Registered User
Mar 28, 2019
61
0
East Mids
After reading your post, I was wondering if your father is ok. Has he got a dreaded fear of dementia and is seeing things that aren’t there? Now that he’s retired, he might be seeing things your mum has done for ages whilst he was at work.

I agree with others that your sister could spend a weekend with mum and maybe someone spend time with dad alone to see if his only worries are about his wife.