I have suffered bereavement, marriage breakdown, other things that break your heart, but one tends to be able to move on from these sadnesses eventually.
It is not the same with dementia is it?
Everytime I think I have an angle on it all, something reminds me that I haven't. How can we possibly move on when the person that has broken our hearts, is unaware that they have done so? When you live with them, see them every day, you are constantly reminded of what you and they have lost, and that the losing carries on every day?
Day In Day Out. Like a dripping tap. Sometimes the anguish is like tendrils of smoke or mist, that you cannot really see. You know he has diminished more today than yesterday, something he doesn't 'get' tells you, or the blank look on his face. Sometimes it is so tenuous that you cannot even give it a name.....
'They' talk about 'Living well with Dementia' and jolly us along. But these kind hearted people don't really know, because they have not experienced what I am going through - even if their partner, parent etc has dementia - because every one is so different. And I think that is why I cannot understand this disease.
Today it is a case of is he unwell or isn't he? He doesn't know, he thinks he is OK, but he is off his food. How can we live 2 lives? Our own, for what it is, and everything to do with our PWD? it's like trying to pat your head and rub your tummy all at the same time......
It is not the same with dementia is it?
Everytime I think I have an angle on it all, something reminds me that I haven't. How can we possibly move on when the person that has broken our hearts, is unaware that they have done so? When you live with them, see them every day, you are constantly reminded of what you and they have lost, and that the losing carries on every day?
Day In Day Out. Like a dripping tap. Sometimes the anguish is like tendrils of smoke or mist, that you cannot really see. You know he has diminished more today than yesterday, something he doesn't 'get' tells you, or the blank look on his face. Sometimes it is so tenuous that you cannot even give it a name.....
'They' talk about 'Living well with Dementia' and jolly us along. But these kind hearted people don't really know, because they have not experienced what I am going through - even if their partner, parent etc has dementia - because every one is so different. And I think that is why I cannot understand this disease.
Today it is a case of is he unwell or isn't he? He doesn't know, he thinks he is OK, but he is off his food. How can we live 2 lives? Our own, for what it is, and everything to do with our PWD? it's like trying to pat your head and rub your tummy all at the same time......