Welcome to Talking Point! Find out more and say hello..

[Grannie G]

Hello @Nims22

My mother used to play with her medication. Her pill box wasn`t automated and she used to fill the gaps left by that day`s dose.

Although carers cannot take responsibility for administering medication they can supervise. Would it be possible for you to get a carer just for this purpose , and also at the same time check on your mother. You could disguise her as a nurse . Most of them wear a uniform.

This was you could put the meds in a safe place out of access.

 

[karaokePete]

Hello @Nims22, you are welcome here and I hope you find the forum to be a friendly and supportive place.

People other than those with dementia are entitled to a needs assessment on the basis of being a vulnerable adult to whom the LA owe a legal duty of care. It may be worth pressing this issue

I hope you have time to take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done.

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.

 

[Nims22]

Hello @Nims22

My mother used to play with her medication. Her pill box wasn`t automated and she used to fill the gaps left by that day`s dose.

Although carers cannot take responsibility for administering medication they can supervise. Would it be possible for you to get a carer just for this purpose , and also at the same time check on your mother. You could disguise her as a nurse . Most of them wear a uniform.

This was you could put the meds in a safe place out of access.

Thanks for the reply. I think carers are a last resort. Her paranoia is high and I get accused of stealing things when she can't find them. So carers will have a hard time. Even my BIL, bless him was guilty of stealing one of her knitting patterns.! He isn't the knitting type.

 

[Scrimjay]

Hello @Scrimjay

My husband also had osteoporosis and also said `you go by yourself` and like you I`m sure it was a bit of self protection and hesitation because he had lost confidence.

The difference is my husband would go for walks by himself. I`m sure it was so he could keep his head down , concentrate on his walking and make sure he wouldn`t have to socialise.

Is your husband capable of going out alone? Would he be safe? If so, could you persuade him just to have a walk round the block just to strengthen his back.

Hi there. He fell over a couple of times, so has lost his confidence, so I (or someone) needs to be with him. I managed to get him to walk round the block a few times last summer, but not lately....hoping he'll go out when warmer...

 

[serenedreme]

Hi

I am new on here. My mum has just been diagnosed with Alzheimer’s at aged 68. Am absolutely heartbroken as we watched my granny go though it so to have my mum with it now just feels so cruel. Would love to connect with anyone else with a parent with Alzhiemers. I’m 35 years old and it is hard to find much support for young people other than from here xx

 

[M&M2805]

Hi, my husband was diagnosed with Alzheimer’s and CBD last year but has been having symptoms and tests since 2015, I have been coping on my own as friends and even family do not visit anymore, people seem to think he is okay. It’s so frustrating because they don’t live with him 24/7.
At first I thought I can cope with this but as his symptoms are getting worse I am feeling more and more stressed, I have been to my GP but she’s totally useless and gave me some leaflets.
We belong to our local young onset group as my husband is just 62, the group is a lifeline to us and he enjoys going.
He has lost all confidence and will not stay on his own anymore so I have to take him everywhere I go. I am waiting for a space to become available for a cigs club one day a week, at least that will give me a break. I wonder how many more carers out there are totally alone in their caring role? It’s just so frustrating.

 

[Cat27]

Hi

I am new on here. My mum has just been diagnosed with Alzheimer’s at aged 68. Am absolutely heartbroken as we watched my granny go though it so to have my mum with it now just feels so cruel. Would love to connect with anyone else with a parent with Alzhiemers. I’m 35 years old and it is hard to find much support for young people other than from here xx

Welcome to TP. I see you’ve already started your own thread & I've replied there.

 

[Cat27]

Hi, my husband was diagnosed with Alzheimer’s and CBD last year but has been having symptoms and tests since 2015, I have been coping on my own as friends and even family do not visit anymore, people seem to think he is okay. It’s so frustrating because they don’t live with him 24/7.
At first I thought I can cope with this but as his symptoms are getting worse I am feeling more and more stressed, I have been to my GP but she’s totally useless and gave me some leaflets.
We belong to our local young onset group as my husband is just 62, the group is a lifeline to us and he enjoys going.
He has lost all confidence and will not stay on his own anymore so I have to take him everywhere I go. I am waiting for a space to become available for a cigs club one day a week, at least that will give me a break. I wonder how many more carers out there are totally alone in their caring role? It’s just so frustrating.

Welcome to TP @M&M2805
Sadly your situation is very common among carers. Please keep posting as you’ll get lots of support here.

 

[serenedreme]

Hi, my husband was diagnosed with Alzheimer’s and CBD last year but has been having symptoms and tests since 2015, I have been coping on my own as friends and even family do not visit anymore, people seem to think he is okay. It’s so frustrating because they don’t live with him 24/7.
At first I thought I can cope with this but as his symptoms are getting worse I am feeling more and more stressed, I have been to my GP but she’s totally useless and gave me some leaflets.
We belong to our local young onset group as my husband is just 62, the group is a lifeline to us and he enjoys going.
He has lost all confidence and will not stay on his own anymore so I have to take him everywhere I go. I am waiting for a space to become available for a cigs club one day a week, at least that will give me a break. I wonder how many more carers out there are totally alone in their caring role? It’s just so frustrating.

Hi, gosh that sounds an awful lot for you to be contending with on your own. And shame to hear the GP has not been more helpful. What’s a cigs club? Is that like day care or something? Can you see a different GP in the practice? Have you got anyone close you can confide in about how isolated you feel? Sad to hear family and friends don’t visit anymore. Do you think they don’t realise how hard it is for you right now? Or do they not visit as don’t know what to say or do? Xx

 

[T3lesto]

Hi, I'm a palliative care counsellor and I'm currently dealing with my granmother prediagnosis dementia. She's a stubborn narcissist who 'has never been sick' despite numerous times we have had proof she was sick, so her memory was selectively poor to start with. Her masking abilities are genuinely impressive but by extention deeply frustrating as getting her diagnosed or to even agree to be seen is impossible... I have to move out of my apartment, she lives with me 6months a year, due to her repeatedly calling the police or kicking me out whenever I dare to disagree with her or have to point out she's forgotten something (which sometimes is unavoidable!) she's fiercely independent but it's making caring for her and getting the support needed impossible. I'm just exhausted and hopefully I can pick up tips 'n tricks or atleast stop feeling so utterly helpless as this mess happens!

 

[karaokePete]

Hello @T3lesto, you are welcome here and I hope you find the forum to be a friendly and supportive place.

I wonder if it would be possible to get your grandmother to the GP by colluding with the surgery to have her called in for something like a wellwoman check as some members have found that the older generation sometimes obey the GP, even when family are being ignored. You could then write to the GP with a list of your concerns so that the Dr is pre warned

Do take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area if a diagnosis is given. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc.
Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.

 

[Jules660_0]

Hi, I'm a newbie after joining sometime last week. Firstly, I really hope I've posted in the right place to introduce myself?
I am 52 and I retired in 2017 on ill health grounds. I've suffered with chronic pain and depression for over 20 years.
My Mam is almost 76 with angina and type 2 diabetes. She was officially diagnosed on 27th March. She has been given a low dose of Donepezil and a follow up appointment on 24th April to assess tolerability. She lives alone in her own home after my Dad died very suddenly 4 years ago (looking back, I truly believe this is when it slowly began). I have LPA and Mam only has me.
I have no idea where to begin. I feel so alone and very scared of what the future holds.
Thank you for being here.

 

[karaokePete]

Hello @Jules660_0, and welcome to the forum. You have come to the right place for information and support.

Whilst you can learn lots from threads on the forums, there is a publications list that covers all issues related to dementia and you can find that with this link https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list the list is useful for many things like understanding the issues and sorting out things like care needs assessments etc.

You can also do a post code check for support services in your area by following this link https://www.alzheimers.org.uk/find-support-near-you

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.

 

[Mark_W]

We've opened our new welcome thread here - https://forum.alzheimers.org.uk/threads/welcome-to-talking-point-find-out-more-and-say-hello.115441/