My sister has early onset (diagnosed formally in 2016) - she was 54 at the time of diagnosis. We are very close so this is hard for me, but she lives in British Columbia (the left hand coast of Canada) - does anyone else have to sit and watch this happen at a distance? I'd love to talk to someone who does.
She has lots of care there and is no longer able to speak much but likes to see me on Skype each week. It is an unusual situation but I can't be the only one out there!
She has lots of care there and is no longer able to speak much but likes to see me on Skype each week. It is an unusual situation but I can't be the only one out there!