Leaning to one side

Lady M

Registered User
Sep 15, 2018
298
0
Essex
Thank you for this thread, my husband started to do this some weeks ago. He keeps telling me it is his cushion making him do it. Hadn’t realised it was part of the disease
Oh! Yes! Not suprizeingly OH has one of those cushions as well! Even the thin cushion in the wheelchair is the same! Would you believe it!!!
Likewise I shall ‘ goole’ The Lewy Lean!!!!
 

katydid

Registered User
Oct 23, 2018
58
0
Hi. My husband does this also, he has Vascular dementia. It seems likely to me, ( I am a nurse) that this is due to a stroke like problem, after all a stroke is a bleed on the brain, and vascular dementia is lots of little bleeds on the brain. I have also notic d that this lean seem s worse along with other symptoms of a TIA, as he is having these fairly frequently now,
So a CVA, Cerebral Vascular Accident, Stroke? In. Miniature?
What do others think of this theory?
 

Soobee

Registered User
Aug 22, 2009
2,731
0
South
My late mum leaned markedly to one side quite soon after she stopped being able to walk. She had vascular dementia. She wasn't on medication for that. I think like katydid it is linked to the parts of the brain that have been damaged by whatever form of dementia it is.
 

nitram

Registered User
Apr 6, 2011
30,246
0
Bury
What do others think of this theory?

My wife had LBD and leaned, I was told it was a form of ataxia.

When walking she could lean to either side or forward.
The forward lean was the worst, if not held back her top half would move forward faster than her feet and she would fall on her face.
 
Last edited:

Caredigby

New member
Oct 25, 2018
3
0
My wife had LDB and leaned, I was told it was a form of ataxia.

When walking she could lean to either side or forward.
The forward lean was the worst, if not held back her top half would move forward faster than her feet and she would fall on her face.
 

Caredigby

New member
Oct 25, 2018
3
0
I am unclear what LDB is. Do you mean 'LBD' - viz 'Lewy Body Dementia'? If so I am almost sure you are right. My late wife had LBD with leaning to the right mainly on walking but sometimes sitting too. Her neurologist called it 'The (Leaning Tower of) Pisa Syndrome' as katydid describes. I guess this is the same as Joyola's 'Lewy Lean' and BeardyD's 'Pisa syndrome'.

This is most likely due to Parkinsons Disease (PD) which goes with many (most) with Lewy Body Dementia
(LBD). Both are caused by the same brain abnormality - 'Lewy bodies' or to give these their scientific name, a protein called alpha-synuclein found in the substantia nigra part of the mid brain in PD , and in LBD mainly in the outer parts - the cortex.

I feel everyone here who describes someone with dementia as also leaning should go back to their specialist (in my experience GPs are less likely to know) and specifically ask if they have Lewy Body Dementia, a diagnosis too often overlooked.This often has other typical features (such as hallucinations, sleeping problems, and a tendency for symptoms to vary in severity often hour by hour) which are too complex to go into here; memory loss is not usually the main feature of LBD.

See the Lewy Body Society (the UK charity which supports and helps fund research in LBD) website for more information about other features of LBD: lewybody.org/about-lbd/symptoms/

Medication for her PD plus chairs with sufficient lateral support were the only ‘treatments’ which helped my wife’s leaning which overall was not her main worry.
 

nitram

Registered User
Apr 6, 2011
30,246
0
Bury
I am unclear what LDB is. Do you mean 'LBD' - viz 'Lewy Body Dementia'?

My typo,I've edited it.
My wife had two consultants, psychiatrist and 'adult movement disorders'. they finally agreed on a diagnosis of LBD.
I agree about the complexity of LBD, I have no personal experience to compare other forms of dementia.

 

Phew

Registered User
Feb 10, 2018
15
0
I'd no idea the lean may be part of dementia. My step father leans to the left. When it's particularly bad I think he's had another TIA but am seeing his Dr tomorrow to talk about meds so shall mention it to her. I'm not sure she's aware it may be connected to dementia either as I've mentioned it before in connection with TIA's. Thanks for all the posts, I'm deff going to read up on Lewy's Body. Thank you all
 

Lovely

Registered User
Nov 30, 2012
4
0
Hampshire
Hi everyone
Both my parents had dementia.
Dad Vascular dementia- he would lean when tired and more so in later stages.
Mum had FTD (frontal, temporal dementia). As the dementia took over she leant over to the left. I was told this was to do with the area of the brain affect.
She would also lean when she had a urine / kidney-infection which was frequently in later stages.
 

davidsitges

Registered User
Apr 26, 2018
14
0
My OH started leaning to the right when walking very early on (even before diagnosis 3 years ago) but he is deaf in one ear and I put it down to balance problems not associated with dementia. Now he also leans when sitting so it does seem to be developing with his illness. However, no accidents yet and I do like the solution of hanging on to his arm when walking! (Thanks, Baggybreeks)
 

SimplySimon

Registered User
Apr 15, 2018
19
0
Sidmouth
My wife has early onset Alzheimer’s and is approaching the end game. Today she showed a massive lean to the right on our walk.

Today she also showed signs of being unable to understand what I’m saying as well as forgetting to pull down knickers before toileting.

This is a scary disease especially as she is (we are) still under 65.
 

MartinWL

Registered User
Jun 12, 2020
2,025
0
67
London
My mother developed a pronounced lean or slump a few weeks before she died. She had no diagnosis of dementia but clearly had a cognitive or neurological decline, with major dysarthria and inability to focus rationally but oddly no memory loss. It was alarming and there was no explanation.
 

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