And so it goes on...
- Thread starter Grahamstown
- Start date
No the file was too big so I shall have to wait until I can resize it.Aren't we clever!
Did you get your photo/image on?
If you google image resizing you should get a selection of website that do this for free, my OH does this for his woodworking forums
Thank you, I will try again. Kept saying too large but I was unsure what to do.
@Mudgee Joy the tracker I use is Tractive GPS Tracker
the device is small and I can follow him on my smart phone. (so far I have not had to do it , I just look and see if the daycare takes him for a walk)
Cheers,
My brother is here for a couple of days and I can’t say enough how wonderful it is to have another person to help, to take up some of the slack, and they get on well. Just to have a conversation with a sensible person is so good.
How lovely @Grahamstown - I do hope you are managing to have a break and not doing too much extra because you have a guest!
Thanks @PalSal - I will get onto it - less stress !
I am anxious tonight with my husband going on ‘holiday’ tomorrow - just need to remember they will be professionals - but still worry
It’s good to hear of your guest too Grahamstown - my sisters in-law took husband out for lunch and were gone 3 hours ! Very generous of them ! X
I am anxious tonight with my husband going on ‘holiday’ tomorrow - just need to remember they will be professionals - but still worry
It’s good to hear of your guest too Grahamstown - my sisters in-law took husband out for lunch and were gone 3 hours ! Very generous of them ! X
It was so good having my brother who is kind and considerate with my husband and has learned very fast the ups and downs of the course of the disease. He was not a lot of trouble @canary and will get cups of tea and help with my husband taking him for a walk and chatting to him. It has done OH the world of good having another person around. He has gone now but will come again in a couple of months. I think it’s helped me too, to be a bit more patient with my OH. I do hope you can relax from the anxiety of your OH going away without you @Mudgee Joy but I can imagine that you will take a bit of time to do that. Take care xx
Well that bit of respite didn’t last long. Sitting in his chair saying ‘it’s time for my lunch’, then looking at the plate and saying how lovely and then that he cannot possibly eat all that, even though I could hardly give him a smaller amount, preceded and followed by heavy breathing which he hasn’t done during the visit and finally back on his bed even though he wasn’t up when I took my brother to the train. It is SO irritating must try harder... Maybe he is stressed by me asking him not to breathe like that.
I feel for you. I know that anger and coldness and it is hard to deal with. My husband was being sarcastic earlier today and l was so upset l burst out Saying l hated him. We had only been together 18 months when the dementia started so no long history for us. Of course l don’t hate the man l married but this sarcastic nasty creature because of his illness l find very hard to deal with.
You both need the time out - if possible most days - the time needs to be there so you can take stock. I use a range of things - cleaner, relatives, carers -it’s not easy almost any day will be a trial . My husband is kind as you have said Grahamstown - but enemy he can be short with me when pushed - and talks a lot of nonsense most days - and is so tired and eating very poorly - I’m trying just snacks now - must be off - I will report again on his weekend away - uuuuuu gggggg. fingers crossed x
I had been wondering why he gets up so late some days, lunchtime in some cases, and other days at a normal time for breakfast. It’s obvious really in his case. I have begun to put a glass of beer or wine evenings together with getting up late and they match. We only have it weekends usually but when my brother was here he had a glass both nights which resulted in a very late rising. I only let him have a maximum of a medium glass of wine or a pint of beer, far less than he would like, but it seems to affect him adversely. It’s the disease in his head I know but that’s no reason to let him damage himself more.
I am thinking of your weekend without him @Mudgee Joy and hope you are doing ok.
I am thinking of your weekend without him @Mudgee Joy and hope you are doing ok.
Working my way through the MOOC course online. So far I realise how much I have learned about ‘dementia’ from TP, and how valuable it is as a source of information and help. I am quite cynical about the subject because I know that there is no cure in sight and that all the healthy living in the world doesn’t protect you as my dear husband is living proof. Still it’s early days and I shall enjoy it.
This morning we went along to the care home I visited last week and we were welcomed and had complimentary coffees sitting in the café which was like a conservatory. We looked around the gardens. He really enjoyed it and I played it low key and said it was a lovely place for a break with help if you need it, and that I was looking for me in case I couldn’t look after myself. If we call up we can go for lunch next time. The manager came to say goodbye and said she would value our feedback about the food. He of course straightened up, smiled, said hello and exchanged pleasantries, said what a lovely place, as if he was the last person to need to come here. Good thing I know about host mode or I would be feeling really stupid. The minute we left it was back to so tired, huffing and puffing and feeling weak. A very small lunch and back in bed now.
This morning we went along to the care home I visited last week and we were welcomed and had complimentary coffees sitting in the café which was like a conservatory. We looked around the gardens. He really enjoyed it and I played it low key and said it was a lovely place for a break with help if you need it, and that I was looking for me in case I couldn’t look after myself. If we call up we can go for lunch next time. The manager came to say goodbye and said she would value our feedback about the food. He of course straightened up, smiled, said hello and exchanged pleasantries, said what a lovely place, as if he was the last person to need to come here. Good thing I know about host mode or I would be feeling really stupid. The minute we left it was back to so tired, huffing and puffing and feeling weak. A very small lunch and back in bed now.
We would all like our old life back and live "normally" @Grahamstown but when you are caring (especially with dementia) its not possible and there has to be compromises (all on our side). If your OH can be left for a short time, that is great, but if not then develop a passion for things that can be done at home - birdwatching, knitting, researching your family tree, or otherwise get in sitters.
Have a great time at the cinema
What are you going to see?
Hi,
I agree It is a big commitment to take on a caring role for someone with dementia and its a tough long road, you go throgh so many different stages, so many difficuties. At time you lose your temper and you feel guilty for losing your temper. You cry a lot, it gets lonely you miss your normal life.
You need to find a balance, you need help to free up time for yourself.
We are lucky as my brother and sister in law work as a team supporting one another.
We took our Mum out a lot, up until November last year we were taking her to the Market where she would have pie and mash and I would take her in sainsburys we would only be out for a couple of hours but it reminder her of what she used to do and she remembered where she lived and that she was home. (She sometimes thought she was somewhere else)
We do it because we love her and she never wanted to go into a home and we never wanted to put her in a home.
Mum is in the end stages now and we will all be lost when she is gone.
You really have to commit 100% to looking after someone at home. Even with carers it not easy and we have fab carers. The road is long....
A bit of a ramble from me.
Christine
I agree It is a big commitment to take on a caring role for someone with dementia and its a tough long road, you go throgh so many different stages, so many difficuties. At time you lose your temper and you feel guilty for losing your temper. You cry a lot, it gets lonely you miss your normal life.
You need to find a balance, you need help to free up time for yourself.
We are lucky as my brother and sister in law work as a team supporting one another.
We took our Mum out a lot, up until November last year we were taking her to the Market where she would have pie and mash and I would take her in sainsburys we would only be out for a couple of hours but it reminder her of what she used to do and she remembered where she lived and that she was home. (She sometimes thought she was somewhere else)
We do it because we love her and she never wanted to go into a home and we never wanted to put her in a home.
Mum is in the end stages now and we will all be lost when she is gone.
You really have to commit 100% to looking after someone at home. Even with carers it not easy and we have fab carers. The road is long....
A bit of a ramble from me.
Christine
