Mum has FTD, diagnosed a week ago, It was a shock but not a surprise.
For the last 4 years she has been exhibiting odd behaviour: hoarding - receipts for everything were stuffed drawers, neglecting the house - no cleaning or stocktaking etc. Being unreasonable at times which was very unusual.
She now acts very childishly - she has the behavioural variant FTD - sings children's songs/talks to God/dead people and thinks she has to go to school in the mornings.
She sleeps a lot now but still runs the bath each night (thank you God!) so at least she is fairly clean. She wears Tena lady pants and has a few urinary accidents most weeks and I have found soiled underwear/nightwear, so the FTD is clearly attacking her brain and changing her.
She is also very rude at times, her behaviour is sexualised - very, very unusual for my once refined mother. She also loves sugary stuff and always wants sweets and cake but she is also overweight and diabetic. She conducts an imaginary orchestra constantly too!
So, I am starting this thread to hopefully hear from others who are dealing with this rarer type of dementia. How are you going/dealing with it. How long is this likely to go on? Mum was diagnosed at 80, not early onset like most others with FTD. Anyone else diagnosed later in life?
Would love to hear your stories and hopefully, share advice and tips to manage this.
Thank you.
Carolyn xx
For the last 4 years she has been exhibiting odd behaviour: hoarding - receipts for everything were stuffed drawers, neglecting the house - no cleaning or stocktaking etc. Being unreasonable at times which was very unusual.
She now acts very childishly - she has the behavioural variant FTD - sings children's songs/talks to God/dead people and thinks she has to go to school in the mornings.
She sleeps a lot now but still runs the bath each night (thank you God!) so at least she is fairly clean. She wears Tena lady pants and has a few urinary accidents most weeks and I have found soiled underwear/nightwear, so the FTD is clearly attacking her brain and changing her.
She is also very rude at times, her behaviour is sexualised - very, very unusual for my once refined mother. She also loves sugary stuff and always wants sweets and cake but she is also overweight and diabetic. She conducts an imaginary orchestra constantly too!
So, I am starting this thread to hopefully hear from others who are dealing with this rarer type of dementia. How are you going/dealing with it. How long is this likely to go on? Mum was diagnosed at 80, not early onset like most others with FTD. Anyone else diagnosed later in life?
Would love to hear your stories and hopefully, share advice and tips to manage this.
Thank you.
Carolyn xx