Hi everyone - and thank you.
Just back from meeting - and guess what? HMB was a no show. She had phoned in sick and sent one of her underlings instead. I must try and curb my nasty suspicious mind, because my initial response was 'Coward' !
The underling showed up nearly 40 minutes early - his first stop was to see Mil - and from your mouth to Gods ear, Red - it might not have been HBM - but Mil reached out, grabbed his arm, and gouged him . (I gave her a high 5 for that one
)
We left him sitting in the waiting room whilst Nurse L, Dr J and self took ourselves to the office for our little pre-meet. Dr J was appalled by what had happened, about the hours being reduced, literally just a few days after we had all met and she and SW had made it very plain that the 1-1 was essential.
Dr J flayed him. No other word for it. She told him that for some 'person' to come in and remove what she , as a consultant, and the SW had identified as essential care was extremely 'cavalier' and stupid, and she wished to make it very plain that if a decision like that was made again, without consultation with herself and other expert opinion, that the person or persons who do that deserve to lose their jobs. She was steaming - but boy, was she cold too. I wouldn't want to be on the wrong side of her. The guy visably wilted. He stuttered and stammered that he didn't make that decision, that he couldn't comment, etc, etc.
Then I waded in.
I asked was it 'policy' for someone to just come in and remove care with less than 24 hours notice. He said it wasn't what he would do. I said I didn't ask what he would do - I was asking was it policy and considered to be acceptable practice?. Then he eventually admitted that yes they could - though that decision would later have to go before 'panal' - probably a week later, to be sanctioned! He added that 1-1 care was reviewed every 4 weeks - but then he changed it to actually, 1-1 has to be reviewed weekly. They 'had' to do that, he said, they have 'no choice' (more buck passing?) . I said I had found no reference to that in the National framework and asked was it a National directive?. Actually, I had to ask twice because he blumphed and blustered initially, before he confirmed that no, that was something that the Health board for this area had introduced (I wonder if the Minister knows about that?).
So, Dr J chipped in and said she would advise - very strongly - that they consider having her attend these reviews, because if Mils care was changed without her being informed and given that she (as the expert) is saying it must not be, then it would be very 'foolish' of anyone to try it (I could have kissed her!). He insisted that whoever carried out the review would 'listen' to expert opinion, and to what the staff and nurses at the CH had to say. I pointed out that the HBM hadn't done that, and that I had no reason to believe that anyone else from CHC would either. I got a rather weak 'I understand' in response.
He then said he had 'no intention' of changing the 1-1 at this point. I said sorry, but I didn't trust him, or the HBM any further than I could throw them. That the HBM had already proved herself to be completely unconcerned about putting a vulnerable person at risk. And that I didn't have words to express how disgusted I was at her and the Health Board, not only because of this latest incident, but because they had consistently let Mil down. I brought up the TD being caused by HB employees over-prescribing medication, despite us repeatedly raising concerns, said that I had let that go - so far - but that this was my limit. If they ever, ever behave like that again, and put her at risk, I would be sharing photographs, videos and the facts with anyone who would listen, press, TV the lot. I also told him that I will be making a formal complaint about the HBM, and notifying the minister of how disatisfied I was with this 'threat' of weekly reviews that could see the care removed with less than 24 hours notice. I also showed him one of the video's I have. To be fair, it made him cringe and wince - a fairly human response for a change, because it is distressing to see. But I wanted to be sure that they realised just what I can and will put into the public domain if they put Mil at risk ever again.
So - I have his assurances that the 1-1 will remain, despite the weekly review, unless all the experts involved indicate that it is safe to stop it. I 100% don't believe this - his lips were moving so I was pretty sure he was lying. I suspect we will get a calm few weeks before they pull another stunt. At which point they will only have themselves to blame because I will do exactly what I have said I will do. Straight to the press and publicity, with no further warnings. There wont even have to be an incident - if they go against the opinion of Dr J, SW and CH staff, I am not waiting for an incident - I'll act straight away.
I also asked for a copy of the DST paperwork from all reviews. He fumbled about that one too, saying he would have to check if it was allowed. So I mentioned FOI - and nurse L chipped in with saying that as I was present, and had been asked to sign the paperwork, then surely I was entitled to a copy? He asked (as though surprised and as if he didn't know) if I was there at the original CHC meeting and when I said yes, told me he would send a copy to OH - who wasn't there (!) .
So - can't call this an end to the matter, still have to be on pins waiting for their next little bit of nastiness. I would like to think that nobody could actually be so stupid to go against the formidable Dr J, let alone risk me letting loose with the evidence of all that's happened - but stupidity seems to be a requirement of being a CHC employee, along with a degree of callousness that beggars belief.
When it was all over, I went to see Mil, and the nurse followed a few minutes later. She felt that between Dr J and myself, we had been exceptionally clear about the risks and the outcomes if they pulled any more stunts with Mils care - not that she felt it would stop the HBM trying, any more than I think it will. But she did say that if they did play up, with everything that has been said to them, that they would be leaving themselves wide open to serious repercussions. I'd rather it didn't come to that - but the ball is in their court now.
Mil was showing TD symptoms, in her jaw and legs - quite fiesty, but fine with me - and believe it or not, she actually got my name right! She had - it seemed - been a handful all day. And had been awake from 8, for the 4th day in a row, causing chaos and being aggressive. Her 1-1 doesn't kick in till 10 a.m. The staff are documenting everything - I wonder what the HBM's response will be when they ask for the 1-1 to be extended, for it to start at 8a.m. because several of them told me that she really needs it!
Am totally shattered. The Snowdon climb was successful, don't have the words to say how proud I am of my climbing crew, they were amazing - but such a long day, as stuff had to be done for publicity, once the climb was over. I left the house at 5.45am that morning, and got home at 11.50pm. In a lot of pain from the driving, and unable to sleep. I did only the essentials yesterday morning, then shut everything down and slept for about 4 hours. Laptop and phone are now locked away in my office, and won't be touched until my AL ends.
Luna continues to fit right in - she's a cockapoo, JM - part spaniel, part poodle
Seamus and she play for hours - and she is in the pond every darn chance she gets. 3 times yesterday - flying leap in, lies down, wags her tail, looks very pleased with herself! Once I manage to stop laughing at her when she does it, I will start to work out how to train her not to - if I can!
Ireland on Monday, and I can't wait. I am so tired and sore at the moment. A week with my lovely sister and her gang, plus the great company over there is just what the doctor ordered
I will check in again before I go though xxxxx
Thank you again, everyone and lots of love to you all xxxxx