Two years to get this bad. What now?

MAMMYGRANNY

Registered User
Jan 26, 2016
69
0
Just catching up on your thread Al - God love you - you've been really going through it. I hope all goes well for you today & praying that your wife settles down in her new surroundings
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. Thank you all for your kind words. It's done. And I don't feel anything, not yet anyway. The only emotion I feel up to now is relief. It's not been easy, especially these last couple of months. Now I just feel an emptiness, I suppose it's normal to feel this way. Tomorrow I'll call and ask about visiting times then go and see how she is. I know she's in the best place for help but it still feels so cruel like I've abandoned her there. I'll sign off now, get some sleep then wake refreshed. It's been a long day. I'm finding it hard to come to terms with the fact she may not be comingback home. I started by saying I don't feel anything, I think I do, it's impossible not to.
Goodnight Al.
 

Izzy

Volunteer Moderator
Aug 31, 2003
74,408
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72
Dundee
Good morning Al.

I hope you managed to get some sleep last night. I would imagine the time to come will be a roller coaster of emotions for you. I hope your wife settles well. Wishing you strength.
 

Bunpoots

Volunteer Host
Apr 1, 2016
7,356
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Nottinghamshire
Hello AL60

I follow your thread although I don't comment. I have the utmost respect for you dealing with the chaos of dementia in your own home. It's something no-one should ever have to do if we lived in a truly compassionate society.

I hope your wife settles well and that you can find some kind of contentment in this new phase in your relationship.
Look after yourself.
 

Grannie G

Volunteer Moderator
Apr 3, 2006
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Kent

carolynp

Registered User
Mar 4, 2018
569
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Hi. Thank you all for your kind words. It's done. And I don't feel anything, not yet anyway. The only emotion I feel up to now is relief. It's not been easy, especially these last couple of months. Now I just feel an emptiness, I suppose it's normal to feel this way. Tomorrow I'll call and ask about visiting times then go and see how she is. I know she's in the best place for help but it still feels so cruel like I've abandoned her there. I'll sign off now, get some sleep then wake refreshed. It's been a long day. I'm finding it hard to come to terms with the fact she may not be comingback home. I started by saying I don't feel anything, I think I do, it's impossible not to.
Goodnight Al.
Well done. Sending you strength.
 

Rolypoly

Registered User
Jan 15, 2018
2,319
0
Through the ups and downs that may follow, hold onto the fact that you know she is in the right place. It has not been an easy decision for you, but one that had to be made. Sending good wishes to you and your wife, and a big squishy hug. May you now enjoy each other without the stress of constant caring.
 

Rosebush

Registered User
Apr 2, 2018
1,478
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Through the ups and downs that may follow, hold onto the fact that you know she is in the right place. It has not been an easy decision for you, but one that had to be made. Sending good wishes to you and your wife, and a big squishy hug. May you now enjoy each other without the stress of constant caring.
Hi. Thank you all for your kind words. It's done. And I don't feel anything, not yet anyway. The only emotion I feel up to now is relief. It's not been easy, especially these last couple of months. Now I just feel an emptiness, I suppose it's normal to feel this way. Tomorrow I'll call and ask about visiting times then go and see how she is. I know she's in the best place for help but it still feels so cruel like I've abandoned her there. I'll sign off now, get some sleep then wake refreshed. It's been a long day. I'm finding it hard to come to terms with the fact she may not be comingback home. I started by saying I don't feel anything, I think I do, it's impossible not to.
Goodnight Al.
 

Rosebush

Registered User
Apr 2, 2018
1,478
0
Hi, Al hope are feeling better today, please don't feel guilty in the end we all have to do what's best, I'm not at that point yet but I have no doubt the time will come.Please look after yourself.Big hugs Lxx
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. A roller coaster of emotions, you're not kidding. Yesterday I felt nothing, today, im all over the place! I know it will get better over time but for now, it's hell.
Went to see her today, I've never known her so quiet. She looks so out of place there,,so sad. Yet I know it's the best place for her.
I'll give it time, I know how it works. One day I'll smile again and really mean it.
Al. :(
 

margherita

Registered User
May 30, 2017
3,280
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Italy, Milan and Acqui Terme
Hi. A roller coaster of emotions, you're not kidding. Yesterday I felt nothing, today, im all over the place! I know it will get better over time but for now, it's hell.
Went to see her today, I've never known her so quiet. She looks so out of place there,,so sad. Yet I know it's the best place for her.
I'll give it time, I know how it works. One day I'll smile again and really mean it.
Al. :(
One day at a time, Al.
Hope you are still sleeping and wake up reasonably refreshed.
 

Casbow

Registered User
Sep 3, 2013
1,054
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77
Colchester
Hi. A roller coaster of emotions, you're not kidding. Yesterday I felt nothing, today, im all over the place! I know it will get better over time but for now, it's hell.
Went to see her today, I've never known her so quiet. She looks so out of place there,,so sad. Yet I know it's the best place for her.
I'll give it time, I know how it works. One day I'll smile again and really mean it.
Al. :(
I am cryng for you Al. I know how you feel and its so bad. But it will be ok. If only we could find a cure for this awful miserable illness. My husband came through it all and I believe is happy and seems to really like all of the staff that help him. I was advised not to visit for a couple of weeks. Maybe that would be best for you. I know you will think that your wife will think you have deserted her but I don't think the dementia mind works like that. I am sure that they don't know how many days have gone by. She settled in when it was respite so give it time again. Love to you.xxx
 

kindred

Registered User
Apr 8, 2018
2,938
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I am cryng for you Al. I know how you feel and its so bad. But it will be ok. If only we could find a cure for this awful miserable illness. My husband came through it all and I believe is happy and seems to really like all of the staff that help him. I was advised not to visit for a couple of weeks. Maybe that would be best for you. I know you will think that your wife will think you have deserted her but I don't think the dementia mind works like that. I am sure that they don't know how many days have gone by. She settled in when it was respite so give it time again. Love to you.xxx
I so agree with what you said about the dementia mind and time. One of the residents at OH home said to me yesterday, I haven't seen you for weeks and weeks and MONTHS. She saw me the day before ... with love and all thoughts, Geraldine aka kindred.
 

carolynp

Registered User
Mar 4, 2018
569
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I so agree with what you said about the dementia mind and time. One of the residents at OH home said to me yesterday, I haven't seen you for weeks and weeks and MONTHS. She saw me the day before ... with love and all thoughts, Geraldine aka kindred.
Oh Geraldine that is so interesting, what you and @Casbow say about time, I must remember it. My OH is still at home of course, well and truly, but he already gets these odd distortions about time. I was hardly taking any notice, I’ve got so much else to worry about that it seemed unimportant - but it is significant and will help me in due course I am sure, as I hope it’s helping @AL60 now.
 

kindred

Registered User
Apr 8, 2018
2,938
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Oh Geraldine that is so interesting, what you and @Casbow say about time, I must remember it. My OH is still at home of course, well and truly, but he already gets these odd distortions about time. I was hardly taking any notice, I’ve got so much else to worry about that it seemed unimportant - but it is significant and will help me in due course I am sure, as I hope it’s helping @AL60 now.
So good to hear from you. Teaching children the time is one of the most tricky skills, along with tying shoelaces and it is the skill people with dementia often (not all) lose quickly. The resident was really saying, Geraldine, it seems a long time since I last saw you, but she expressed it in terms of days and months so from our point of view it's not accurate! It is interesting. Thank you so much for posting. Geraldinexx
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi again. I know what you mean about the time thing. I heard the dr ask how long did she stay in the care home, she answered , about a week. Lost two weeks somewhere. I feel much better than yesterday. I went to visit again today. It's upsetting leaving her there when its time to go. The staff actually want me to go, they say they need to see how she reacts. All she talked about today was about putting her things in the car and going home. I was hoping to have aday off tomorrow but my sister in law asked me if she could go tomorrow afternoon. Oh well, looks like im going again tomorrow.
Time for sleep now, I'm so tired, no problem sleeping anyway, Al.o_O
 

margherita

Registered User
May 30, 2017
3,280
0
Italy, Milan and Acqui Terme
The staff actually want me to go, they say they need to see how she reacts. All she talked about today was about putting her things in the car and going home.
Hi Al, how are you doing today?
I do not have firsthand experience, but I have read here on TP that frequent visits do not help PWDs to settle in their care homes.
How is your wife? Quieter ? Is she eating more (and better) than when she was at home?
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi Al, how are you doing today?
I do not have firsthand experience, but I have read here on TP that frequent visits do not help PWDs to settle in their care homes.
How is your wife? Quieter ? Is she eating more (and better) than when she was at home?
Hi. After visiting every day since last Tuesday I'm feeling inclined to agree. No good for me either, a forty miles round trip and sitting for two hours with nothing really to say. She's so quiet, I really don't think she'd worry too much if I called two or three times a week instead, she thinks I'm in a room upstairs anyway. As for eating, one day she says the food is awful, next day its ok. I've got a review meeting next Friday. Hopefully I'll get answers to any concerns then. The nursing staff at the unit are excellent. Hopefully her stay at this assessment unit shouldn't be too long then perhaps a move to somewhere closer to home. One thing's certain, today I'm having a day off,
. I won't visit until Tuesday. Two days off. All the family are here this weekend, should be good? All I really want is peace and quiet. Be careful what you wish for:)I'll just try to enjoy the moment. Al:).
 

margherita

Registered User
May 30, 2017
3,280
0
Italy, Milan and Acqui Terme
Hi. After visiting every day since last Tuesday I'm feeling inclined to agree. No good for me either, a forty miles round trip and sitting for two hours with nothing really to say. She's so quiet, I really don't think she'd worry too much if I called two or three times a week instead, she thinks I'm in a room upstairs anyway. As for eating, one day she says the food is awful, next day its ok. I've got a review meeting next Friday. Hopefully I'll get answers to any concerns then. The nursing staff at the unit are excellent. Hopefully her stay at this assessment unit shouldn't be too long then perhaps a move to somewhere closer to home. One thing's certain, today I'm having a day off,
. I won't visit until Tuesday. Two days off. All the family are here this weekend, should be good? All I really want is peace and quiet. Be careful what you wish for:)I'll just try to enjoy the moment. Al:).
Hi Al, you sound a bit better. No wonder you want peace and quiet, which you haven't had for a long time.
Hope you enjoyed the weekend with your family .