Makes you wonder if actually 'gaining' CHC Funding is worth it these days, if that is the case.
£450 is a lot of 'extras'.
£450 is a lot of 'extras'.
CHC (Continuing Healthcare) support thread
- Thread starter stanleypj
- Start date
Is it possible to pay top-up fees for NHS continuing healthcare?
No, it isn't possible to top up NHS continuing healthcare packages, like you can with local authority care packages.
The only way that NHS continuing healthcare packages can be topped up privately is if you pay for additional private services on top of the services you get from the NHS. These private services should be provided by different staff and preferably in a different setting.
https://www.nhs.uk/conditions/social-care-and-support/nhs-continuing-care/
Note the crucial wording '....should be provided by different staff and preferably....'
No, it isn't possible to top up NHS continuing healthcare packages, like you can with local authority care packages.
The only way that NHS continuing healthcare packages can be topped up privately is if you pay for additional private services on top of the services you get from the NHS. These private services should be provided by different staff and preferably in a different setting.
https://www.nhs.uk/conditions/social-care-and-support/nhs-continuing-care/
Note the crucial wording '....should be provided by different staff and preferably....'
Thank you @nitram for your reply, it seems such a minefield and so open to interpretation and I agree @lemonjuice i am beginning to wonder if it is worth it.
The care home also advised that top up fees are not allowed with CHC funding, so I’m beginning to question if I heard the CHC person correctly, although I’m pretty certain that she did say third party top up.
Also, to add to the confusion, the paperwork I got today from the CCG confirmed that dad was assessed eligible for funding and that all his care costs would be met and I don’t need to do anything. The letter was dated the 4th July, but I received this phone call yesterday on the 5th. Also, the assessment was all based on his need to be in a specialised Dementia unit due to his unpredictable and challenging behaviour, the Panels conclusion in the paperwork agreed with this too, but now they are saying they are not willing to pay for this element of it, just for Residential.
The care home also advised that top up fees are not allowed with CHC funding, so I’m beginning to question if I heard the CHC person correctly, although I’m pretty certain that she did say third party top up.
Also, to add to the confusion, the paperwork I got today from the CCG confirmed that dad was assessed eligible for funding and that all his care costs would be met and I don’t need to do anything. The letter was dated the 4th July, but I received this phone call yesterday on the 5th. Also, the assessment was all based on his need to be in a specialised Dementia unit due to his unpredictable and challenging behaviour, the Panels conclusion in the paperwork agreed with this too, but now they are saying they are not willing to pay for this element of it, just for Residential.
They have to provide it but not necessarily in a home of your choice which charges more than they are prepared to pay, they are turning a blind eye to the rules and allowing you to make up the deficit.
Beware that if, for whatever reason, you agree to this extra the home could increase it without any reference to the CGC.
For the time being I would not pay anything to the home nor sign any agreement, I would also tell them to invoice the CGC for the full amount. Then wait and see what happens.
There will only be a few homes that accept the CGC rate and they may not have vacancies, the CGC might prefer any vacancy is filled by residents whose relatives simply do not have the funds to pay any excess.
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Seems good advice to me, especially as you have the letter
stating they will pay all costs.
I appreciate the 'trade-off' is that they may well place your father in another Home of their choice, though as nitram suggests finding one with a place available may be easier said than done.
Hi, I thought I’d add an update to my posts. The decision regarding full CHC funding for dad’s current care home was escalated to the Assistant Director of the CCG.
I have finally had confirmation this week that the Assistant Director has agreed to pay the full funding for dad in his current care home. We don’t have to move him or pay for any ‘special extras’ which is such good news and a relief.
Thank you for your support and advice,
Elle x
I have finally had confirmation this week that the Assistant Director has agreed to pay the full funding for dad in his current care home. We don’t have to move him or pay for any ‘special extras’ which is such good news and a relief.
Thank you for your support and advice,
Elle x
Hi All
I’m another member after a bit of advice regarding NHS Continuous Healthcare. I’ve done quite a bit of research on the subject but would like your advice if that’s ok.
Dad is being discharged to a care home on Thursday from our local hospital for 28 days respite paid for by our local council, after 28 days he will be re assessed and to be totally honest I suspect he will probably stay in the care home which I think will be partly funded by the council and dad’s pensions.
Now the big question is do you guys think I should mention applying for CHC fundingor am I wasting everyone’s time. Dad has the following conditions and problems.
He has Vascular Dementia with Parkinson’s.
He has lost most of his mobility and needs at least two people to get him to the toilet , he suffers with leg pain due to nerve damage that was caused by a cholesterol tablet he was prescribed 10 years ago, he also has arthritis in his knee.
He needs help with eating and drinking.
He has no cognition
He can’t really tell you what he needs
He can be aggressive but then emotional
He has had a heart bypass operation
He has suffered a brain haemmorage
He has had a heart attack
He basically has to rely on others for everything.
Do you think he has a chance or am I wasting our time
He needs EMI care
I’m another member after a bit of advice regarding NHS Continuous Healthcare. I’ve done quite a bit of research on the subject but would like your advice if that’s ok.
Dad is being discharged to a care home on Thursday from our local hospital for 28 days respite paid for by our local council, after 28 days he will be re assessed and to be totally honest I suspect he will probably stay in the care home which I think will be partly funded by the council and dad’s pensions.
Now the big question is do you guys think I should mention applying for CHC fundingor am I wasting everyone’s time. Dad has the following conditions and problems.
He has Vascular Dementia with Parkinson’s.
He has lost most of his mobility and needs at least two people to get him to the toilet , he suffers with leg pain due to nerve damage that was caused by a cholesterol tablet he was prescribed 10 years ago, he also has arthritis in his knee.
He needs help with eating and drinking.
He has no cognition
He can’t really tell you what he needs
He can be aggressive but then emotional
He has had a heart bypass operation
He has suffered a brain haemmorage
He has had a heart attack
He basically has to rely on others for everything.
Do you think he has a chance or am I wasting our time
He needs EMI care
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In Spite of my own continuing bad experience with CHC, I would still recommend you ask for a CHC assessment. Looking at what you have listed you should get it but the difference between "should" and "will" is a very large one. They should also consider a Fast Track Assessment but sadly these CHC people appear to be a law unto themselves. I still say ask for a CHC assessment and document everything.
Hi..i have never applied for chc funding as i was under impression that dementia didnt come under that umbrella..mum had vascular dementia with touch off Alzheimer's ( still not sure what that means)..also blind..over 11 years ( diagnosed).most probably 2 year before that..so in total 13 years..mum been in CH for now 7 or so years now ; we moved her 3 years ago to a new home as wasnt happy with other....that was the last time i had any connect with social services ..cut to the chase ..roughly 8 weeks ago ..got a phone call out of the blue from social services..to say i was shocked was an understatement.. it was a courtesy call to ask if i was happy with my mum care..i explained yes i was ( good job as they didnt have any inpt or follow up at all.). I was more then happy..social worker then asked if he could come on check all care plans were update..ect..i said yes no problem..s/ w came a few days later and i met him..i explained how happy i was with CH..and gp and D/N..as mum is end stage classed as end of life and everyone was on board that mum will end her days at CH..he asked me was it ok to interview mum!!!!-..my response was good luck with that..5 mins later S/W came out and asked me as anyone suggested CHC funding to which i said no..he said straight away..yes your mother is entitled to it..within 2 weeks mum was awarded it..and i honestly didnt do anything..S/ W was amazing..he liased with gp / dn..and home. And it was all set up..i was so impressed i was actually shocked...so morale of story..you need a blxxdy good S/W
Not sure congratulations on getting funding so quick is the right thing to say given the sad reasons/situations of getting it rewarded with Dementia etc, but I hope you know what I mean.
I also totally agree a good SW is so important. Ours was fantastic.
Elle x
Hi Sixty74, Sorry to hear about your father. I have just been through the very same situation with my 84 year old mother who I finally succeeded in getting CHC funding for and also got it back-dated from when she was discharged from hospital and admitted to a care home. On reading your post, I believe that there is a strong chance that your Dad will qualify
Hi Sixty74, Sorry to hear about your father. I have just been through the very same situation with my 84 year old mother who I finally succeeded in getting CHC funding for and also got it back-dated from when she was discharged from hospital in July 2014. On reading your post, I believe that there is a strong chance that your Dad will qualify. It is just a matter of how you play things with the Local Authority who have responsibility for your father. If you want any help, please let me know. Richard
Hi Richard
Thanks for your reply, We have a meeting with SS and the care home on 28 of this month to discuss Dads care and wether he will stay where he is, move or come home. I am quite happy with the care home he is currently in and expect Dad to be L.A. funded, however when he was discharged from hospital I did ask about a CHC assessment and was told that this now happens outside of hospital, although after researching here I now know that this is totally wrong and that it should have been done in hospital, however the hospital could not get rid of Dad quick enough and basically told me that if we did not move Dad to the care home they had chosen they would withdraw funding, I knew that this was emotional blackmail but had to move him as he was vastly going downhill in a hospital setting. He has settled quite well in the care home but still requires 2 care staff to take him to and from the toilet , they have in fact applied for one to one funding and the SW has told the home to make notes of his care needs which we will discuss on 28th. Obviously his dementia will not improve and he is unlikely to regain his mobility. I was thinking that CHC funding was dead in the water and I would have to opt for L.A. funding instead with Dad losing his pension. Any advice would be really welcome.
Sixty74, I have sent you a private message, which you can access by clicking on the envelope in the top right corner. Richard
Not sure if this has been posted elsewhere, but in case you might find useful, there are now revised copies of the CHC Checklist and the Decision Making Tool as of October 2018 as follows:
CHC Checklist:
https://www.continuing-healthcare.c...althcare_checklist_-_October_2018_revised.pdf
Decision Support Tool:
https://www.continuing-healthcare.c...ision_support_tool_-_October_2018_revised.pdf
CHC Checklist:
https://www.continuing-healthcare.c...althcare_checklist_-_October_2018_revised.pdf
Decision Support Tool:
https://www.continuing-healthcare.c...ision_support_tool_-_October_2018_revised.pdf
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