I have read all the posts on this strand. Thank you all. I am new to this forum because I have been frozen with fear at the thought of reading how much worse life could get ... I have been sole carer for OH with az for nearly five years. I am quite tiny and he is well over six feet tall. It has been hard and I see I could have had your amazing comradeship. My experience of social support such as it wasn't was that it was demeaning and pointless. In the middle of one of the worst weeks ever, they offered me a hot stone massage. So, I cracked on, every night writing an hundred lines, I must endure ... Now, being a mental health professional, even I can see I was broken. My OH deteriorated so quickly that I faced all kind of trauma in short order, not to mention the endless destructiveness of the house - pulled radiator off wall, flood, ruined all the electrics, mucked up the gas, stuffed towels down the toilet etc etc etc.
I begged social services for assurance that if I was too ill to manage, there would be some way OHcould be cared for. But at the dreaded hint that I might mean care home, they lectured me on deprivation of liberty, and even told me that if I phoned Care direct, I would be, and I quote ASTONISHED AT HOW LITTLE HELP I WOULD GET. They said this twice, just so I could hear it fully. They said all they could do was send me a list of local care homes, so I said, good. The list came with the contact details blanked out. I would need to be a self-funder as OH has savings of £60K. And I accept this completely, was never trying to get anything for free.
So I continued to write my hundred lines and kept going, trying to make life as valuable as poss for beloved OH (we have been together since University in the sixties). I was getting iller and iller and then of course, the train crash. He had a dreadful fall, had to go to A and E and was admitted to hospital. This is where things changed. The doctors assured me they would not be admitting him home, I could not manage. It took two or three of them to manage what I had been doing alone for years. The wonderful social worker signed a best interest statement saying he needed residential care and even helped me find a suitable vacancy.
That was a month ago. OH is now happily settled in a very loving specialist dementia nursing home and I am there every day for as long as I can be.
Did we have to go through that? Was there any other way? I am becoming less frozen, still wake every hour thinking I hear OH calling. For three years had hardly any sleep, kept going on professionalism and caffeine.
This is my question again, did we have to go through that?
Yet I read what you wonderful guys post and I see that yes, we did. Thank you all with all my heart. I wish I had had the courage to go online before.