I feel that I am losing it I was always very much in contol now the stress of living 24/7 with someone with Alzheimers i taking it s toll on me. I can not think straight as my Husband keeps on at me all the time. It is impossible to have a conversation as everything he talks about he can not get the word out and calls it a thing Every conversation becomes a puzzle to solve to know what he is talking about We are together 24/7 so there is no break except we go to a lunch club once a week. When we are at the Lunch Club he just sits there and does not join in. I can not leave him as he opens the door to anybody. I feel better now after having a rant
Hi Apple and anyone else struggling,
It's very very very tough. I would suggest the following ideas for you and your husband (apologies if you have thought of them already), which I hope will help you to cope more.
Daycentre for OH
dementia cafe for OH
Sitters for OH if daycentre is a non-starter.
Asking family and friends to sit with your husband
Have a different door lock or alarm which reminds him to stay indoors
If your husband cannot think of, or articulate the words or , can he recognise pictures or write the words down?
Support group for you
Call the Alzheimers helpline - they can support, listen, and give you helpful suggestions, and give you information on the above options
Talk to Social Services about both your needs - ask for a carer's assessment
I would highly recommend getting support systems in place, as early as possible, so that you aren't caught out in an emergency, to support you, and, very importantly, to get your husband used to others. I would also recommend learning as much as you can, if you don't already, about your husband's type of dementia. It could really help. As you can get frustrated, so can your husband and his condition is probably frightening for him as well.
So, support yourself as much as you can, so you can carry on supporting your husband for as long as you feel able to do so. But please ask for the help and good luck.