The (excellent) specialist dementia doc has just told us that my OH's Alzheimer's is now at severe - after only 18 months at moderate (and diagnosis in 2013). More of a shock though was that from now on there will be no annual review with the dementia doc or the nurse because basically nothing can be done; contact will now be with our local GP surgery who seem to know very little about the problem or how to help. Is this everywhere or just my area?
Specialist medical support ends
- Thread starter buttons61
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hello @buttons61
from what I gather from comments on TP this is pretty much everywhere - in fact you seem to have stayed under the consultant longer than some - it does appear to be 'policy' to discharge to the supervision of the GP
I'd make sure that you contact your OH's GP straight away and give a detailed description of how things are for your OH and any concerns you have, so they are up to date on your situation
I hope you are getting some support form Adult Services
from what I gather from comments on TP this is pretty much everywhere - in fact you seem to have stayed under the consultant longer than some - it does appear to be 'policy' to discharge to the supervision of the GP
I'd make sure that you contact your OH's GP straight away and give a detailed description of how things are for your OH and any concerns you have, so they are up to date on your situation
I hope you are getting some support form Adult Services
Thanks for this. Adult Services as in from the council? There is a dementia care advisory service I beleive and a Carers organsition, so will talk to them as well. AD is a degenerative terminal brain disease as we know and I think that warrants specialist consultant time of 20 minutes a year at least!
yep, some form of support from your Local Authority Adult Services ie home care visits, day care, respite - it's not medical supervision but does help with the practicalities of living - your OH has a right to an assessment of care needs
and here's a link to the main AS site's listings of local services
https://www.alzheimers.org.uk/homepage/168/dementia_connect#!/search
and here's a link to the main AS site's listings of local services
https://www.alzheimers.org.uk/homepage/168/dementia_connect#!/search
OH was never discharged from the Memory Clinic and was faithfully seen every six months. They were the ones prescribing his Donepezil and he was never taken off it, as that might have caused a sudden downturn. Their reports were crucial evidence for obtaining AA and helped with gaining support from SS too. I think this is how it should be and it annoys me to see it varying so much throughout the country.
I got the impression that my husband was discharged from the consultants care because there is no treatment for vascular dementia. He was only ever seen for diagnosis, then a final visit to discharge him. We are in East Kent
OH has a Nurse Prescriber from the Memory Clinic about every 6mths - he does an excellent assessment on how he finds OH during his visit and decides if he needs anything else from another service and we get a copy of his report - we are in Ashford, Kent - it must be a postcode lottery situation !
That’s weird, isn’t it? Ashford is one of our ‘go to’ hospitals, with Margate and Canterbury. Maybe it is because it is vascular dementia, and there is no treatment?
My wife was under the memory clinic at QEQM (Margate) and attended every 6 months. After 2 years, they discharged her back to our GP, as they said there was nothing further they can do for her. We can, though, always contact them directly if we need further help should things change dramatically, without going back through the GP. She has Fronto Temporal Dementia.
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