Hi Daisycat,
Yes my youngest is 13 and he is really struggling with it all. He is spending less and less time with my OH it is all just so alien to him, hard enough being a teenager I think.
My older boy is a real strength he is at uni but really helps as he still lives at home and will cook meals etc when I'm out, which is helpful as earlier in the year my OH lost loads of weight which we discovered was partially caused by him missing lunches.
I'm very reluctant on them being too involved however, I just think they are too young and I want to protect them from it as much as possible. I don't know if that is the best thing to do I think it
Hi thanks,
I had a look at these last week and printed out for my husband to read with me, he explained he wanted to talk to our youngest (13 ) himself, then he asked me later if I could do it with him then didn't want to do it at all. I spoke to my son about it as he already knows, we all do, it's just my husband is unaware of the differences that everybody else can see. My son said he didn't want to talk about it with him. I think they both just need to pretend nothing has changed so I left it at that.
I think at the moment the practicalities are overwhelming ( mum, wife, carer, my job) when I have my rational head on I will just get on with it. However, this morning was a bad day. This afternoon will be better because I am a practical person and will make it better. A friend visited me and brought with her reassurment that Id have help and that I needed to organise and to ensure I looked after myself.
Then I watched my husband arrive home from the gym, he drove up the kerb around 10 times before he managed to park. I'm amazed passing traffic didn't hit the car. So I called the gpsurgery to find out when we would be getting our memory clinic app as the neurologist at the hospital explained that is the next step. Weve had no formal diagnosis other than the neurologist telling us it is early onset dimentia and I know I need to act regarding the dvla etc but nothing at this point seems formal. The surgery told me I need to call the hospital and it just goes back and forth! It seems to have all been delayed because the last few gp apps he always passes their tests, but he's really clever and some of the questions are the simplest you can imagine, but at the last one he had really struggled, he couldn't remember words, stopped mid sentence got very confused around his subject area ( he's an academic) Anyway tomorrow will be a better day. And again thanks as I know through reading this forum there are a lot of very amazing people going through the same and worse. I think this rambling is just another method for me to cope, which is barmy because I don't do social media this is a FIRST! Right.... back to the real world...