Carer for my dad

Kat03

Registered User
Aug 13, 2017
12
0
I have been carer for my dad since August, I stepped into care for my dad after I saw my mum was struggling to cope with caring for my dad. I am working 12 hours to care for my dad and am looking at asking work if I can do less hours to be at home to care more for my dad because it is becoming increasingly harder for my mum to come physically with my dad. My mum is 70 and has asthma. My dad is 79, he has dementia, Parkinson's and mobility issues.

I provide the following care for my dad:
• I prepare meals, feed him, give him drinks and sit with him encouraging him to eat

• I address all his continence issues as he is doubly incontinent and manage his intimate hygiene

• I dress him

• I manage his oral hygiene

• I manage his medication

• I manage his general personal hygiene and bathing

• I wash his hair.

• I have a bed sensor for my dad, so I know when he is getting up during the night, so I am on call throughout the night too - he needs assistance for the toilet

• I attend doctor's/hospital appointments with him and my mother

• I sit with my dad when my mum is out

• When my mum is home I am close by in my room on hand should my dad require any care

• I check on him regularly to see if he needs anything and ensure he is clean and dry

I am caring for my dad 24/7 apart from when I am at work 12 hours a week + 6 hours travel time and a regular one hour monthly appointment.

We (my parents and I) are moving into a flat in a retirement housing facility (renting from a social landlord), the age limit is 50 but they are letting me live there despite my age (38) because my mum told them I have to come too because of the care I provide my dad and she can't cope without me. I can't be on the tenancy due to my age, I am just on the books as a member of the household. I am moving in primarily in the role as my dad's carer, I am claiming Universal Credit (payment £249) due to my low income (£335 a month wage), I am unable to get the housing element of UC because I'll be living in the flat with my parents. Due to this my mum said the care I provide my dad can be lieu of rent. However, my dad's financial and property power of attorney (my brother whom I'll refer to as POAX) said I have to pay £200 rent and half of the bills, if I don't agree to pay rent then don't move or if I don't pay rent I have to move out. I have sought legal advice and have me POAX is within his legal rights to charge me rent and take me to court to kick me out if I don't pay.

My parents tenancy states this:

1. The tenancy states: 7.1 You must not sub-let any part of the property without getting our written permission first. We may attach conditions to any permission and we may also vary or revoke any permission given (in which case you must take steps to comply with the variation or revocation - including lawfully evicting your sub-tenant if necessary). ‘Sub-letting’ means giving someone exclusive right to live in part of the property in exchange for the rent they pay you. They will usually do their own cooking and cleaning.

a) Before granting consent we will need you to put the terms of the sub-tenancy in writing. These terms must be acceptable to us. You must tell us the name, age and gender of any person who is residing in the property under any sub-tenancy, both before it is granted and after any changes. If we ask for further information, for example to ensure that any person living in the property is not breaching immigration rules, then you must give us the information we request.

I have contacted the social landlord to confirm if POAX asking me for £200 rent is a breach of my parent's tenancy and if he can get permission from them to sublet to me and create a sub-tenancy.

I am doubtful about this because I cannot be on the tenancy due to my age so why would they allow me to be on a sub-tenancy.

I am going to move into flat with the parents pay a 3rd of the bills. When my dad had capacity he only wanted to pay a 3rd of the bills and no rent. If POAX asks me for rent, I will tell him that if he isn't happy with my living with my parents providing my dad's care then the options are: 1) he gives up work (self-employed), moves in with my parents and cares for my dad, 2) gets a live-in carer (cost £985 a week), 3) put my dad in a care home.

My dad gets higher rate AA.

I am not claiming CA because for every £1 for CA I'd get my UC payment of £249 would be reduced by £1 so I'd be no better off.
 

Soobee

Registered User
Aug 22, 2009
2,731
0
South
Sounds very tricky. I can only advise that you definitely seek legal advice before moving in.

I think that if you were to move in and then the POAX gets you kicked out, you might become homeless (and possibly be regarded as intentionally homeless).

Also, you seem to be doing a lot of caring and you need respite for yourself. Please consider getting some paid carers in so that you get a break too, and your dad gets used to others caring for him when you might be ill etc.
 

Kat03

Registered User
Aug 13, 2017
12
0
Sounds very tricky. I can only advise that you definitely seek legal advice before moving in.

I think that if you were to move in and then the POAX gets you kicked out, you might become homeless (and possibly be regarded as intentionally homeless).

Also, you seem to be doing a lot of caring and you need respite for yourself. Please consider getting some paid carers in so that you get a break too, and your dad gets used to others caring for him when you might be ill etc.

I did seek legal advice. I was told POAX can ask me for rent and can apply to the court to have me removed from my parent's flat.

I do provide a lot of care for my dad (599 hours a month) yes. A break would be nice.

Thank you.
 

Bod

Registered User
Aug 30, 2013
1,971
0
Call POAX's bluff.
It's going to cost him a lot more than £200 pw to have done what you are prepared to do for bed and board.
Hopefully you still have your previous home, or somewhere you could stay, whilst he discovers (the hard way) what you do.
It will be tough on your mum, but that's the situation.
He could of course employ you at the going rate, as a live-in carer. (don't forget NI, income tax, pension, etc.)

Bod
 

TheBearsMummy

Registered User
Sep 29, 2017
100
0
East Midlands
I agree call his bluff.
Could you contact a private company that provides care and ask them to send a quote to your brother for providing the things you list?
After all he will have to set this up if you have to return to full time work to pay your rent and being in full time employment you will no longer need to live with your parents... he doesn't need to know you would not dream of doing this to your mum
 

Bunpoots

Volunteer Host
Apr 1, 2016
7,356
0
Nottinghamshire
I was about to suggest the same as Bod. We once looked at getting full time care in and I can't remember the exact figures but it was more than the cost of a care home placement.

So if your brother insists on you paying half the rent just bill him for your dads care. He sounds very unreasonable.

I imagine the bill would be in the region of £4,000+ a month...
 

Kat03

Registered User
Aug 13, 2017
12
0
I am going to move in, pay a third of bills (I am not paying half because when my dad had capacity he only wanted a third of bills and no rent, plus there are 3 people living in the flat not 2 even though my parents are married they are still individuals), I am not going to pay rent because the care I provide my dad more than covers my rent. I'm going to tell him if he isn't happy with the arrangement of me living in the flat providing my dad's care then the options are: 1) He move in and provide my dad's 24/7 care, 2) He pay for a live-in carer, 3) Put my dad in care home.

Thats it I am not going to say anymore to him.
 

Shedrech

Registered User
Dec 15, 2012
12,649
0
UK
hi Kat03
may still be worth contacting your dad's Local Authority's Adult Services and asking for an assessment of his care needs, which he has a right to, and see if a care package can be put in place to have home carers visit and take on some tasks, and also have your dad spend some time at a day care centre to give him some socialising out of the home which, just as important, will give your mum some time when she is not having to worry about him and can relax with some time to herself
it could also mean that you need not reduce your working hours - it's great that you want to support your parents - however this issue with the Attorney is a shot across your bows; you must also consider your own future, your finances and where you would live should you have to move out (for any reason)
 

Kat03

Registered User
Aug 13, 2017
12
0
I was about to suggest the same as Bod. We once looked at getting full time care in and I can't remember the exact figures but it was more than the cost of a care home placement.

So if your brother insists on you paying half the rent just bill him for your dads care. He sounds very unreasonable.

I imagine the bill would be in the region of £4,000+ a month...

Our local dementia care home costs £970 a week. Live-in care £975 a week