How to avoid the dementia tax.........

pipd

Registered User
Apr 12, 2015
75
0
Leigh on Sea Essex
Mum was rated severe on behaviour, severe on cognition, high communication, high mobility, moderate psychological and emotional needs, high nutrition,moderate continence, drug therapies and medication and also moderate on skin and no needs on the other three items on the checklist.
 

pipd

Registered User
Apr 12, 2015
75
0
Leigh on Sea Essex
If she's going into an NHS unit then why would you need CHC? NHS care is free isn't it?
K
This unit is in the process of becoming a care home so not sure if it will always be free. All I know is a present they can only accept CHC funded patients so nobody can just choose to go there, they have to assessed for CHC and be eligible before being accepted. They specialise in behaviour issues with dementia. Complicated system with care for dementia as many care homes don't seem to be able to cope with the severe stage. Hoping this will be a good move for my mum though.
 

Kevinl

Registered User
Aug 24, 2013
6,056
0
Salford
This unit is in the process of becoming a care home so not sure if it will always be free. All I know is a present they can only accept CHC funded patients so nobody can just choose to go there, they have to assessed for CHC and be eligible before being accepted..
Strange! It's currently NHS but what being privatised?
What happens if CHC ends as it sometimes does, do they kick you out?
Have you checked the status of the home on the CQC website? That will tell you who owns and runs it.
K
 

nitram

Registered User
Apr 6, 2011
30,075
0
Bury
Mum was rated severe on behaviour, severe on cognition, high communication, high mobility, moderate psychological and emotional needs, high nutrition,moderate continence, drug therapies and medication and also moderate on skin and no needs on the other three items on the checklist.

Thanks for that.
Locally I help people with their applications.
Concentrating on P or S in behaviour/cognition for PWDs is the way to go.
Other domains are more difficult to evidence.
 

pipd

Registered User
Apr 12, 2015
75
0
Leigh on Sea Essex
Strange! It's currently NHS but what being privatised?
What happens if CHC ends as it sometimes does, do they kick you out?
Have you checked the status of the home on the CQC website? That will tell you who owns and runs it.
K
I have checked the cqc website, I haven't actively chosen this place for my mum, it has been suggested to me as her current arrangements are not suitable for her needs. It's a very long story which started with an a&e visit seven weeks ago and my mum being given unsuitable discharge options by the hospital who mislead the nursing home about her needs of care. The nursing home made it clear they couldn't cope with mum and so a CHC assessment was carried out and this unit seems to be the only suitable place for her to be placed. The fact it is due to become a care home (an NHS one maybe?) doesn't concern me at this stage, I just need my mum to be in a place that can cope with her. Her next assessment for CHC is due in 12 months time si I'll cross that bridge when I come to it.
 

nitram

Registered User
Apr 6, 2011
30,075
0
Bury
Her next assessment for CHC is due in 12 months time si I'll cross that bridge when I come to it.

Somewhat unique, typically 3 months.
I agree, count your blessings and don't worry about the technicalities of how the home is operated.
 

lemonjuice

Registered User
Jun 15, 2016
1,534
0
England
. .
Concentrating on P or S in behaviour/cognition for PWDs is the way to go.
Other domains are more difficult to evidence.
I though one couldn't scor in both Behaviour and Cognition? Or at least that's what I was told as this counted as a double negative.
 

Kevinl

Registered User
Aug 24, 2013
6,056
0
Salford
Somewhat unique, typically 3 months.
I agree, count your blessings and don't worry about the technicalities of how the home is operated.
I agree that 12 months as an initial award is unusually long and as pip said earlier "All I know is a present they can only accept CHC funded patients so nobody can just choose to go there," is a concern. If CHC is withdrawn then you're out from the sounds of it. I've never heard of that policy which is why I'm querying the status of the place, CHC only.
K
 

nitram

Registered User
Apr 6, 2011
30,075
0
Bury
I though one couldn't scor in both Behaviour and Cognition? Or at least that's what I was told as this counted as a double negative.


Cognition - severe
Cognitive impairment that may, for example, include, marked short-term memory issues, problems with long-term memory or severe disorientation to time, place or person.

may co-exist with

Behaviour -severe
‘Challenging’ behaviour of severity and/or frequency that poses a significant risk to self, others or property. The risk assessment identifies that the behaviour(s) require(s) a prompt and skilled response that might be outside the range of planned interventions.

or even

Behaviour - priority
‘Challenging’ behaviour of a severity and/or frequency and/or unpredictability that presents an
immediate and serious risk to self, others or property. The risks are so serious that they require
access to an immediate and skilled response at all times for safe care.

Note that when the challenging behaviour is not evident the person may, or may not, exhibit cognitive problems.
 

pipd

Registered User
Apr 12, 2015
75
0
Leigh on Sea Essex
Somewhat unique, typically 3 months.
I agree, count your blessings and don't worry about the technicalities of how the home is operated.
Yes I will count my blessings and I also thought it'd be three months to the next assessment but have paperwork come through today stating 12 months.
 

lemonjuice

Registered User
Jun 15, 2016
1,534
0
England
Cognition - severe
Cognitive impairment that may, for example, include, marked short-term memory issues, problems with long-term memory or severe disorientation to time, place or person.

may co-exist with

Behaviour -severe
‘Challenging’ behaviour of severity and/or frequency that poses a significant risk to self, others or property. The risk assessment identifies that the behaviour(s) require(s) a prompt and skilled response that might be outside the range of planned interventions.

or even

Behaviour - priority
‘Challenging’ behaviour of a severity and/or frequency and/or unpredictability that presents an
immediate and serious risk to self, others or property. The risks are so serious that they require
access to an immediate and skilled response at all times for safe care.

Note that when the challenging behaviour is not evident the person may, or may not, exhibit cognitive problems.
That makes sense, but sometimes when cogniton is so severe that they become so passive, because their brain is not able to process anything, even to become a problem.
 

Mrnkar

Registered User
Oct 28, 2017
25
0
Great to hear some good news. I will be appealing my father's CHC assessment. Still waiting on the final decision papers, although according to the hospital a final decision has been made. Not sure why I haven't received anything yet, but the good news going towards my appeal, is my father has just been refused an EMI nursing home place due to his behaviour, which the assessors downplayed in their assessment. Hopefully my fight will be won.
 

Staff online

Forum statistics

Threads
138,144
Messages
1,993,299
Members
89,798
Latest member
JL513