Tomorrow I get results of my brain scan that might determine whether I have Familial early onset Alzheimers. My mum was diagnosed at the age of 62 and died 25 years ago at the age of 69. Brother very similar, died 5 years ago. Sister diagnosed 2 years ago at the age of 61 and from that moment I have worried, cried and have been living in terror. It's as if an 'alzheimers' black cloud follows me continuously. So I have made the decision to have the brain scan (done 20th Oct) through the memory clinic that my sister attends. I am 60 next February.
If my test is clear then I am 'still in the loop' and believe I will be invited back for an annual scan to keep an eye on me. It breaks my heart and causes me so much pain to see my sister walk this dreadful road that my other loved one's have walked before her and the knowledge that my children/grandchildren may do the same. I am so grateful there are forums such as this. They can only be helpful and comforting to patients and their carers. Whatever the outcome I will always find comfort in the messages. Fingers crossed.
If my test is clear then I am 'still in the loop' and believe I will be invited back for an annual scan to keep an eye on me. It breaks my heart and causes me so much pain to see my sister walk this dreadful road that my other loved one's have walked before her and the knowledge that my children/grandchildren may do the same. I am so grateful there are forums such as this. They can only be helpful and comforting to patients and their carers. Whatever the outcome I will always find comfort in the messages. Fingers crossed.
