I am having a terrible few days!
I started with a pig of a cold on Thursday. Couldn't do anything except lie in bed and cry because I couldn't sleep and I just wanted the inability to breathe through my nose and the headache to go away. OH gave Mum the basic care (meds, food etc.) and she had carers in the morning to get her up, but today she started shouting for me every few minutes. When I hauled myself out of bed, holding a hanky over my nose to stop my germs spreading to her, she said that no one had told her I was ill - apart from every time OH sees her which she doesn't remember - and I should stay here, but she wants to go home. OH can't deal with that sort of thing, so I had to get out of bed every time she called, which was every half hour or so, and persuade her to stay here with us on 'holiday'. (We're not on holiday).
On top of that, I've been in chronic pain for ten years. Recently requested a second opinion, but the consultant took one MRI scan and said he could see nothing wrong with me and there was nothing he could do. Basically ... sorry, Jo, but you're going to be in chronic pain for the rest of your life, unable to travel or socialise for more than a couple of hours, but hey ho. I can't be bothered to do the multitude of tests that might actually tell us what's wrong with you.
And then, to top everything off, I have just been reassessed for PIP, and the DWP have decided that I can walk a lot further than I actually can, and so I am losing all my disability benefits, and probably my Blue Badge as well. Yes, I can request a mandatory reconsideration, and then go to appeal at a tribunal, but I have no medical evidence, and I'm sick and tired ... nay, exhausted ...of fighting. Fighting the care system, fighting the benefits system and fighting the NHS. For Mum and now for me as well. I just don't have the energy at the moment.
Feeling really low. It's probably the cold, but I'm just so tired. Two years of looking after Mum 365/24/7 and I'm currently waiting for the SS to arrange respite care for her so that I can have a break.
Sorry to moan at you all, but I'm just in despair at the moment. Thanks for reading.
Hugs
Jo xxx
I started with a pig of a cold on Thursday. Couldn't do anything except lie in bed and cry because I couldn't sleep and I just wanted the inability to breathe through my nose and the headache to go away. OH gave Mum the basic care (meds, food etc.) and she had carers in the morning to get her up, but today she started shouting for me every few minutes. When I hauled myself out of bed, holding a hanky over my nose to stop my germs spreading to her, she said that no one had told her I was ill - apart from every time OH sees her which she doesn't remember - and I should stay here, but she wants to go home. OH can't deal with that sort of thing, so I had to get out of bed every time she called, which was every half hour or so, and persuade her to stay here with us on 'holiday'. (We're not on holiday).
On top of that, I've been in chronic pain for ten years. Recently requested a second opinion, but the consultant took one MRI scan and said he could see nothing wrong with me and there was nothing he could do. Basically ... sorry, Jo, but you're going to be in chronic pain for the rest of your life, unable to travel or socialise for more than a couple of hours, but hey ho. I can't be bothered to do the multitude of tests that might actually tell us what's wrong with you.
And then, to top everything off, I have just been reassessed for PIP, and the DWP have decided that I can walk a lot further than I actually can, and so I am losing all my disability benefits, and probably my Blue Badge as well. Yes, I can request a mandatory reconsideration, and then go to appeal at a tribunal, but I have no medical evidence, and I'm sick and tired ... nay, exhausted ...of fighting. Fighting the care system, fighting the benefits system and fighting the NHS. For Mum and now for me as well. I just don't have the energy at the moment.
Feeling really low. It's probably the cold, but I'm just so tired. Two years of looking after Mum 365/24/7 and I'm currently waiting for the SS to arrange respite care for her so that I can have a break.
Sorry to moan at you all, but I'm just in despair at the moment. Thanks for reading.
Hugs
Jo xxx