Is my father stressed by m's dementia or also getting dementia?

herdaughter

Registered User
Sep 21, 2015
12
0
London
My parents live in Canada. My mother has dementia and has been in a care home since early May. None of us children lives even on the same continent, so my father was her sole carer for several years, refusing all help, till various crises I've previously posted about -- basically the police and social services had to step in and take her away from him, not once but twice, because he was getting violently angry with her. However you view that otherwise, it's been terribly, terribly stressful for him.

Anyway, in the past two or three months I find, both when I visit and on the phone, he repeats questions over and over within minutes -- "What time did you say we would --?" He seems to be losing his grip on time completely -- day of the week, even month, time of day, moving memories by whole decades into time frames that a moment's thought would show are impossible. But perhaps that's normal in aging, especially when retired and living alone?

Most concerningly, he seems to be becoming paranoid. But perhaps that's natural given how my mother had to be taken from him, and given that he's now living alone in a large house that he refuses to sell but can't really keep on top of. (Please don't think I'm unsympathetic, btw. I can SEE how hard all this is for him.) He accused me of talking to his doctor in secret about his medical needs. Not true, but he changed doctor and said he would report her to the medical association. (Fortunately he seemingly isn't organised or energetic enough to carry through. Fortunately too he still lets me visit every two months or so to cook and comfort and visit.) Now he has sacked the only home help he had, the cleaner who's been coming in for a few hours every other week for 30 years. He accuses her of stealing things he can't find that have no real value -- a winter hat, most recently a white china vase of the kind florists often give free with flowers.

From 4000 miles away, with my next visit scheduled for December 20, I'm not sure how worried to be, still less what to do. Do any of you think this could be signs of dementia? And if so, do I have to wait till he, too, falls into a crisis that will bring in the police and social services? Is there anything I should try doing before December?
 

herdaughter

Registered User
Sep 21, 2015
12
0
London
My parents live in Canada. My mother has dementia and has been in a care home since early May. None of us children lives even on the same continent, so my father was her sole carer for several years, refusing all help, till various crises I've previously posted about -- basically the police and social services had to step in and take her away from him, not once but twice, because he was getting violently angry with her. However you view that otherwise, it's been terribly, terribly stressful for him.

Anyway, in the past two or three months I find, both when I visit and on the phone, he repeats questions over and over within minutes -- "What time did you say we would --?" He seems to be losing his grip on time completely -- day of the week, even month, time of day, moving memories by whole decades into time frames that a moment's thought would show are impossible. But perhaps that's normal in aging, especially when retired and living alone?

Most concerningly, he seems to be becoming paranoid. But perhaps that's natural given how my mother had to be taken from him, and given that he's now living alone in a large house that he refuses to sell but can't really keep on top of. (Please don't think I'm unsympathetic, btw. I can SEE how hard all this is for him.) He accused his doctor of showing me his private medical records. He sacked his doctor, declaring both her and me "evil women," and said he would report her to the medical association. (Fortunately he seemingly isn't organised or energetic enough to carry through. Fortunately too he still lets me visit every two months or so to cook and comfort and visit.) Now he has sacked the only home help he had, the cleaner who's been coming in for a few hours every other week for 30 years. He accuses her of stealing things he can't find that have no real value -- a winter hat, most recently a white china vase of the kind florists often give free with flowers.

I might add, both the nurses in my mother's care home and the entirely forgiving cleaner say they think he's developing dementia, but all (including the nurses) say they're not specialists in diagnosing dementia or other geriatric disorders.

From 4000 miles away, with my next visit scheduled for December 20, I'm not sure how worried to be, still less what to do. Do any of you think this could be signs of dementia? And if so, do I have to wait till he, too, falls into a crisis that will bring in the police and social services? Is there anything I should try doing before December?
 

SnowWhite

Registered User
Nov 18, 2016
699
0
Is it possible for you to go any earlier than 20 December? This must be a massive worry for you being so far away. I have to say, it does sound to me like he also has dementia but I am not a medical person. Just many of the things he's doing sounds like what we've been through and what friends at the dementia group say about their partners or parents.

You mention other siblings. Does anybody live closer than you who could go and check things out before 20 Dec. Xx
 

Graybiker

Registered User
Oct 3, 2017
326
0
County Durham
Hi,
Interesting to read your post as I have had the same thoughts for some months now.
However, although dad has struggled to find words for some time and recently has become forgetful re past events etc I hate to say your father sounds further along the line.
I'm not a medical professional and have only my personal experience to go on.
If I were you, I'd write to my dad's doctor and ask him to visit and refer to social services, or equivalent. Is there any way you could arrange for a meeting with doc, ss, and maybe occ therapy for when you next visit?
Sorry you're having this additional worry
Xx
 

canary

Registered User
Feb 25, 2014
25,078
0
South coast
I must say that it was when my mum started accusing a longstanding and very dear friend of hers of stealing from her that I had a lightbulb moment and realised that she had dementia. The memory problems that you describe dont sound like the sort of thing that you get from normal aging or stress either.
I dont know the procedure in Canada, but I think it would be good idea to get him to the doctor (might be easier said than done, I know). I also know that you have had this problem with your mum and probably know the people to alert about your dad.
 

MaryH

Registered User
Jun 16, 2016
120
0
Ottawa, Canada
Hi herdaughter,

Not sure how old your Dad and Mom is and where they live in Canada so I will describe my case.

I am in Canada (Ottawa, Ontario to be precise) and had recently got mom assessed at a geriatric day hospital and she is diagnosed with mild vascular dementia at 86. Dad was diagnosed 3.5 years ago with Mild Cognitive impairement (MCI), 2.5 years ago with Dementia by Geriatric Program of Eastern Ontario nurse and further diagnosed to mixed Alzheimer and Vascular dementia by his geriatrician at 88.

His Geriatrican did a presentation and said the odds of having dementia is 2% at 65 and doubles every 5 years after that. So at 85, odds of dementia is normally 32% and mom has more than 2 of the health factors such as hypertension, diabetes, high cholestrol, afib, etc.. the risk doubles to 64%. Also her heart attack resulted in her heart functioning at about 50-60%, leading to less blood to the brain.
http://www.rgpeo.com/media/70114/dementia2015 final june 9 2015.pdf

I noticed things like she had had trouble remembering her dates and thus her medication even though they were in blister pack but she would think it is a different day or day of week than it is. I got her an American Lifetime clock from amazon about C$80 this summer but they seem to have gone up to $125 but here is a 2 pack still for $154 and another less expansive clock for from le Cross for her bedroom for about $35

https://www.amazon.ca/PACK-Version-...r=8-17-spons&keywords=american+lifetime&psc=1

https://www.amazon.ca/s/ref=bl_dp_s...75011&field-brandtextbin=LA+CROSSE+TECHNOLOGY

She was dehydrated due to increase in water pill over xmas and her creatinine shot up and she exhibited signs of paranoia against a nice home help that has been working for her for 3 years and who is a nursing student and we had her doctor calling me due to a high creatinine of 250 to adjust her water pill and to rehydrate her. She had similar paranoia from someone in the building who is pretty nice thinking she send some food in a pot and the pot did not come back when she sent in in a bowl and that came back with soup.

Recently I had a friend's daughter who is starting her medical residency but having completed medical school, internship and 1 year of residency already abroad stay with us for a few weeks while she is looking for a flat and mom got into full paranoia mode with her too in addition to challenging behaviour i.e. slapping herself in the face which she learned from Dad who was mid stage alzheimer and vascular dementia who was influenced by his mom who used to hit her head against the wall to control her family.

I used to work and live in London, Paris and Prague for 10 years and distance was one of the reasons I moved back to Canada since my parents were getting in their late 60s and 70 and a friend had trouble flying out to us for 2 days when a parent died. I was able to get home overnight from San Francisco when dad went into surgery for burst gall bladder..

So where does your parents live and how old are they? You can calculate their risk for dementia from their age so you have a ball park figure of risk for dad.

My suggestions are
* 1st try to get your dad a full physical (check for UTI, dehydration or other medical condition that might explain the paranoia via delierium perhaps) and
* get your dad a Moca (montreal cognitive assessment test) or otherwise known as memeory test.
* If you have phone number to neighbours or relatives that see your dad regularly, try to call them and ask if they had noticed any issues recently. They are closer and may have insights or facts you don't have. someone I know whose mom had dementia was notified of the fact by her neighbours.

If you have a similar program where you dad lives you can also try to get family doctor or someone to refer to the geriatric program of the city your dad lives.

Does anyone have POA for your dad? In some places doctor would not even talk to you if you do not have POA.
 

Witzend

Registered User
Aug 29, 2007
4,283
0
SW London
Accusing neighbours of stealing things nobody in their right mind would want anyway (manky old wee-stained pedestal mat was just one!). was certainly an early sign in my FiL.
My sister in law had taken it away and burnt it.