Thanks for all your comments. We saw a lovely nurse who seemed extremely supportive. It's true what you say about life becoming normalised. When I read back over the application form I'd forgotten half the points I made because they are so everyday now.
I should have asked for a home visit too, instead of dragging him on a train journey. He was nearly in tears when we arrived. It is taking a lot to get used to drawing on the support that's available, and I forget that we can't do anywhere near as much as we were used to, and everything we can do, takes 3 times as long.
So now we wait and see. Keep everything crossed for us please!
EG