Girlfriend of guy with Alzheimer's

Casbow

Registered User
Sep 3, 2013
1,054
0
77
Colchester
Hi there Helping him. First i must say what a wonderful person you are to care so much about your friend to try and help him. I am in shock. Everything I know about Dementia (After 10 years) is that it points to age, lifestyle, lots of unknown stuff, but never this young age. I find it very hard to believe. I suggest getting in touch with Alzheimers Society. If they can't help you I don 't know who can. I really feel for your friend if this is true. Please keep posting. We all need to know what is wrong with your friend. (Or why it has happened to one so young.) Thinking of you and wishing it all goes well with helping your friend.xxxx
 

oilovlam

Registered User
Aug 2, 2015
386
0
South East
Hi there Helping him. First i must say what a wonderful person you are to care so much about your friend to try and help him. I am in shock. Everything I know about Dementia (After 10 years) is that it points to age, lifestyle, lots of unknown stuff, but never this young age. I find it very hard to believe. I suggest getting in touch with Alzheimers Society. If they can't help you I don 't know who can. I really feel for your friend if this is true. Please keep posting. We all need to know what is wrong with your friend. (Or why it has happened to one so young.) Thinking of you and wishing it all goes well with helping your friend.xxxx

Casbow, it isn't impossible. There is a community in South/Central America (Perhaps Mexico) that have a genetic predisposition to dementia. The scientists are investigating which genes play a role in the disease and are also trying to help them with new drugs.
 

PalSal

Registered User
Dec 4, 2011
972
0
Pratteln Switzerland
Casbow, it isn't impossible. There is a community in South/Central America (Perhaps Mexico) that have a genetic predisposition to dementia. The scientists are investigating which genes play a role in the disease and are also trying to help them with new drugs.[/QUOTE

I am very sorry for your young friend and for you. I am aware that there are genetic Alzheimer's in Columbia where it affects very young people, there is a clinical study run by the University of Washington in St. Louis Missouri. What is the nationality of your boyfriend? My husband was diagnosed at 49 and I am sure it began much earlier.
But I would hope that all possibilities have been explored medically for your boyfriend. I do not know what you have been told, unfortunately a diagnosis of Alzheimer's cannot be a 100% accurate for any of us- I hope there will at least a second opinion for your friend. Talking point is not made up of experts, just others struggling with living with the illness. We welcome you.
 

Jessbow

Registered User
Mar 1, 2013
5,733
0
Midlands
Goodness me, that's a dreadful diagnosis at 16, how long did he show symptoms before he was diagnosed?

Tough road ahead for both of you x
 

Spamar

Registered User
Oct 5, 2013
7,723
0
Suffolk
I think the youngest person diagnosed with dementia was 7. Just come to me from a talk I did years ago!
 

Casbow

Registered User
Sep 3, 2013
1,054
0
77
Colchester
Well I feel so sad that this can happen to such young people. I knew that it might happen in 40's etc but this is a shock. So I wish you well in trying to get help that will be needed. Good for you, for trying to help your friend. Sorry I can't be of any use.xxxx
 

Roseleigh

Registered User
Dec 26, 2016
347
0
They know it's Alzheimer's.

While your support for your boyf is admirable I do feel that you need to be realistic and ask yourself where this relationship is going. It might be better sooner rather than later to step back a little from this tragically blighted young man and treat him as a friend rather than a lover.

It may seem hard but you have to put yourself first, and when you leave for uni you should not feel so embroiled that you cannot start new sexual relationships. This would then leave you able to continue to offer a limited hand of friendship when you come home.
 

Pacucho

Registered User
Hello,

Sorry to read about your boyfriend, and I also want to say you are doing a great job in trying to help him.

As regards finding out more about your boyfriend's dementia and what to expect, this will be difficult because he has such a rare form of dementia. But the best place to start would be to approach your boyfriend's consultant, if you know who he or she is, as it is likely they are a specialist in this field. Therefore, they may know of other people/organisations you can approach.

Also there is another organisation called Young Dementia UK, who may be able to help (https://www.youngdementiauk.org/). But you need to note that any person who has a diagnosis and is below 65 years of age is classified as a young person with dementia.
Hope this helps,

Paco