Hello, I am so sorry to hear about your Mum and your situation. My heart goes out to you, your mum and family. It is an extremely difficult time for you and to watch your mother like this. Your mum must have a strong heart and will to keep going. She is a fighter, tough little cookie.
Not to take away anything from your post or situation but just to give you some advice from my experiences.
My mother was diagnosed with Alzheimer's eight years ago when I was 28 and recently passed away three weeks ago.
I completely empathise and feel for you and your family what you are going through.
From the beginning to the very end it was one of the hardest, toughest and emotional experiences I have ever had in my life. Although the hardest and toughest times and days out of everyone was what my mother went through. I forgot about me what I felt and mum was the only person I could feel for and try to make her as happy and content as I could. Everyday was a struggle for her going through all the stages of this awful disease. It was heartbreaking and I just had to hold her hand and guide her as best I could. Mum developed epilepsy in her last year.
Although I know mum has been so very ill all these years from Nov 16 she was admitted to hospital and was in for two months until moving into a nursing home at end of Jan 17. Mum had multiple bouts of pneumonia, sepsis, infections and seizures. On three occasions we were all told to prepare for the worst although each time mum pulled through. Although certainly there was further rapid decline. Within that three month period her speech was non existent, her mobility existed to nothing, swallowing and eating was both difficult and survived on very little spoonfuls of food yoghurt.
I hope this not upset you or scare you which I know it may as it did every time I would read these types of posts but they were some sort of comfort to know what may lie ahead.
I used to ask all the time to doctors and care home could this be it?! No one could ever say which I know no one could. It was all just wait and see. It is just the worst. To watch someone you love so very much just fade away is indescribable. So many emotions
Mum was eventually put on palliative end of life and had to let her take her time. No further antibiotics were to be prescribed as it had just gone too far for her now.
I stayed with my mother every night in hosp and visited everyday numerous times at nursing home along with my brother and dad.
When we could see mum was definitely looking like it may not be long my brother and I stayed with her all day and overnight each day for the week before.
We would sing, talk, listen to music, laugh, cry, everything we would do normally around mum. Had long conversations with her together, on our own. Told her everything I wanted to say but most importantly that it was okay for her to go and that I would look after myself anc brother and dad. It pained me every single time to say it as I didn't want her to go from a very selfish perspective but deep down I knew this can't continue for her it was not fair. I told her I wanted her to be happy see her mum and dad and how proud I was of her.
Everything I did say, I had already told her this everyday for a very very long time even before her illness. We were very close.
I can only imagine how you feel at the moment but please stay as strong as you for your mother. She will be very proud of you. Your mum may not be able to respond but trust me she knows that you are there and will bring great comfort to her. Let her hear your voice. The reassurance to her will be with her forever.
Every individual responds in many different ways and I send your mum and your family comfort and strength on your journey.
Stay strong and I know it is very difficult but take good care of yourself too xx
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