Hi Everyone
Just come on for a bit of a rant really. My OH was diagnosed with early onset az nearly 5 yrs ago age 52, its been hard as he had to stop working at the begining of this year and this has been difficult sorting out managing financially, i applied for esa for him back in feb and finally about 4 weeks ago we had the letter saying he was going into the support group for esa. Massive sigh of relief from me !!!!! Oh No sighed to soon, last week we both received a letter from the job centre to go in and see a job coach !!!!
I have a part time job as well as being his carer, and he has just been diagnosed with acute asphasia and they want to see us to talk about how they can help us get back into work !!!!!!!!!!
Obviously i called the DWP to be told that even though its voluntary on his part to go, if we dont attend then its likely his money will be sanctioned......
So we will attend, he will be so anxious and stressed, inc me to be honest, however im not going to do my usual and talk on his behalf, i think i'll just sit back and see how the job coach gets on asking him questions etc. I dont want to come across as cruel but how cruel is it to expect a 56 yr old man with az who finds it nearly impossible to put a sentence together have a conversation about going back to work !!!!
Im so angry that the dwp are doing this, az is not an illness that can be blagged, hes never getting better, in fact his consultant told us last week that hes shocked at the rapid decline in my OH over the last 6 months !! I try my best not to be bitter and angry about this disease, but i feel bitter and angry, our plans for retirement are no longer a reality, and i watch my husband decline on a daily basis, i love him, hate this disease and really hate how people are treated with this disease.
Rant over, sorry
suz xx
Just come on for a bit of a rant really. My OH was diagnosed with early onset az nearly 5 yrs ago age 52, its been hard as he had to stop working at the begining of this year and this has been difficult sorting out managing financially, i applied for esa for him back in feb and finally about 4 weeks ago we had the letter saying he was going into the support group for esa. Massive sigh of relief from me !!!!! Oh No sighed to soon, last week we both received a letter from the job centre to go in and see a job coach !!!!
I have a part time job as well as being his carer, and he has just been diagnosed with acute asphasia and they want to see us to talk about how they can help us get back into work !!!!!!!!!!
Obviously i called the DWP to be told that even though its voluntary on his part to go, if we dont attend then its likely his money will be sanctioned......
So we will attend, he will be so anxious and stressed, inc me to be honest, however im not going to do my usual and talk on his behalf, i think i'll just sit back and see how the job coach gets on asking him questions etc. I dont want to come across as cruel but how cruel is it to expect a 56 yr old man with az who finds it nearly impossible to put a sentence together have a conversation about going back to work !!!!
Im so angry that the dwp are doing this, az is not an illness that can be blagged, hes never getting better, in fact his consultant told us last week that hes shocked at the rapid decline in my OH over the last 6 months !! I try my best not to be bitter and angry about this disease, but i feel bitter and angry, our plans for retirement are no longer a reality, and i watch my husband decline on a daily basis, i love him, hate this disease and really hate how people are treated with this disease.
Rant over, sorry
suz xx