Thanks everyone,
I do know that you are all right, that its better that she stays at the hospital whilst they try and stabilise her behaviour rather than risk a failed discharge and the possibility (probability?) that the home won't have her back if that happens. But I was just so sick of having things going wrong at the last minute, yet again, that I'm afraid I was throwing a bit of a hissy fit myself yesterday - sorry
And if I'm honest, although a lot of my fed-up-ness is down to concern about Mil, some of it is also down to me really wanting everything settled - or at least more settled - so that I have the time to focus on other things that are going on, that are currently being very neglected due to everything revolving around 'Getting Mil sorted'. And that in part, the attitude of the 'professionals' is something that I am currently feling especially furious about - there is just no consideration or acknowledgement that we (I) might have other committments, just an expectation that we should be able to chop and change even our working hours at a moments notice, if THEY think its necessary and an attitude that we are being difficult or obstructive if we try to explain that sorry, we can't always do that.
Its all a bit me-me-me and feeling sorry for myself, I'm afraid
The SW did phone me back fairly promptly, to be fair. And once again, the ward hadn't contacted her - she not only knew nothing about Mil's move being cancelled - she didn't even know that the move had been sceduled for today in the first place
And she wasn't happy - but she can sort that one out with the ward, definitely not down to me to make sure she is kept informed. Concerns about Mil losing her place at the home were pretty much dismissed and there appeared to be no advice she could give. I suppose I was hoping for a little bit of reassurance, as well as advice - silly me, not a flipping chance!
The home didn't phone back until after 4 o'clock. The hospital had actually phoned them (colour me amazed!) and the woman I spoke to said that the doctor had explained that Mil was 'unwell' and that an agreement had been reached that the move could be delayed till next week - thank God, they will hold the room. No idea if Mil will have to pay the fee's out of her own funds whilst its being held, but don't care - it gives us a breathing space. Concerned, however, that the home seem to think that Mil is physically ill (due to the chest infection), rather than the hospital having told them that this is all down to current aggressive/difficult behaviour - I'm not in favour of fudging and not being transparent. In my experience, that usually leads to more trouble, further down the line
Once I had that call, I shot off to grab some much needed shopping, OH went and picked up son from the train station, then we went to visit Mil - amongst all the stress about the cancelled move, we were also obviously worried about how she was and needed to see her ourselves. The staff nurse let us in, and once again, the warning about her behaviour. Youngest didn't come, so we were able to stay on the main ward, although we did go into the dining area with Mil. When we first saw her, it was almost like a step back in time to some of the worst of what we dealt with when she lived here - remember that fixed, angry, mulish expression I used to talk about? I haven't seen that for a while now - but it was back in force last night. Her body was absolutely rigid as she sat, gripping her frame and everything about her radiated anger. But when we called her and she saw us, she more or less melted! Her face softened to a big smile, her body relaxed - and we actually had a really good 30-odd minute visit with her. Confabulations, of course, confusion of course - but absolutely no sign of any agitation.
The staff nurse saw us out, and painted quite a different story - I like this particular staff nurse, I've found she tends to tell us it like it is, but does so with obvious compassion and sometimes humour. We said that we had been expecting the worst, but that Mil had been really chilled. She said she was glad to hear it, but that we had been lucky - that the ward had had to resort to 'time out' with Mil that day on a couple of occasions, because she was quite simply 'looking for a fight' and absolutely nothing was distracting her or calming her. So she had been escorted to her room, as a way of preventing her getting physical with the other patients. By the sound of it, she had been provocative, insulting and threatening, and the staff had had their hands full stopping her getting violent
The staff nurse commented how Mil had had an answer for 'everything' - again, shades of bad days here, when every single thing said to try and calm her and reassure her was met with a rapid response and a twisted logic that justified her (in her her head) staying nasty and angry. The nurse described her as 'incredibly paranoid'. We were left with the impression that Mil's behaviour had been incredibly hard for them to manage and that they were slightly stunned by how impossible it is to distract or calm her. As OH commented - we definitely know how that feels
They are stopping the ab's, as from yesterday, and will review on Friday, then again on Monday - its now just a case of wait and see.
The meeting is at 11.30 this morning - OH is working tonight, so I'm going solo. OH has offered to come, but his job is too damn responsible for him to risk not being properly rested when he goes on duty, so I've said I can cope. Not really sure what to expect - trying to be ready for just about anything, I guess
If there are going to be any nasty bombshells about funding, todays the day I think that they are likely to be lobbed at me - we'll see.
Amy, I am so glad that all went so well with your meeting - Nurse A sounds really good, knowledgible and sensible, which is great. I so understand the wobble over the finances and accounts - and the feeling that you just can't think about something any more, even if its only a short break. At times, aspects of this whole, horrible illness and the caring that goes with it are just so totally overwhelming and exhauting, that I think we have to shut down, at least in part, to even cope - sending {{{{{{{{hugs}}}}}} and hoping a good nights sleep helps xxxx
Take care everyone and have a good day - will try and update later xxxxx