Last week progress was made, visited an Alzheimers Soc day care place... and had an assessment by ss. I think he will be given two days a week.
But now it raises more questions. Firstly, since the two "adventures" last week, my OH has been so much worse I can hardly believe it. I think if he does go to day care, he will be very difficult indeed later in the day. So will it be worth it I wonder? (That's rather a rhetorical question, I know I have to start somewhere.) But then, if he is difficult in the centre.... starts undressing, won't sit down... whatever, will they allow him to stay? When we visited I noticed all the people seemed "normal", all sitting, some chatting, some reading, some painting, having lunch.
Next I think I need to do the legwork on care homes, both for respite and for long term, as if the current rate of decline continues, I don't think I will manage for long. I will need eyes in the back of my head to keep him safe, apart from the obvious difficulties. I had always thought that the tipping point would be when he no longer knows who I am, but I am not so sure of that now. Are respite homes different places from long term places, or do some offer both?
So, how does it work? It would have to be fully funded. The social worker did not have a list of homes. Alzheimers Soc just gave me the link to bettercaring.com. Does the home have to be in our LEA area (we live on the edge)? Do I ring them all and find out if they qualify for fully funded places... narrow it down like that? I am not going to be able to top up at all, in fact if he goes into care I won't have enough money to live on. Or do the LEA tell us where he must go? The social worker, who was kind, friendly and seemed very professional offered no info whatsoever.
I'd like my fingers to do as much of the walking as possible, get fully informed, before I start visiting. That part will be grim.... the plain research not so bad.
We are in Cardiff.
Any info and advice where to start, how to proceed very welcome!
But now it raises more questions. Firstly, since the two "adventures" last week, my OH has been so much worse I can hardly believe it. I think if he does go to day care, he will be very difficult indeed later in the day. So will it be worth it I wonder? (That's rather a rhetorical question, I know I have to start somewhere.) But then, if he is difficult in the centre.... starts undressing, won't sit down... whatever, will they allow him to stay? When we visited I noticed all the people seemed "normal", all sitting, some chatting, some reading, some painting, having lunch.
Next I think I need to do the legwork on care homes, both for respite and for long term, as if the current rate of decline continues, I don't think I will manage for long. I will need eyes in the back of my head to keep him safe, apart from the obvious difficulties. I had always thought that the tipping point would be when he no longer knows who I am, but I am not so sure of that now. Are respite homes different places from long term places, or do some offer both?
So, how does it work? It would have to be fully funded. The social worker did not have a list of homes. Alzheimers Soc just gave me the link to bettercaring.com. Does the home have to be in our LEA area (we live on the edge)? Do I ring them all and find out if they qualify for fully funded places... narrow it down like that? I am not going to be able to top up at all, in fact if he goes into care I won't have enough money to live on. Or do the LEA tell us where he must go? The social worker, who was kind, friendly and seemed very professional offered no info whatsoever.
I'd like my fingers to do as much of the walking as possible, get fully informed, before I start visiting. That part will be grim.... the plain research not so bad.
We are in Cardiff.
Any info and advice where to start, how to proceed very welcome!