It's been so long since I've posted on here. Short recap from September to the beginning of January I was bringing dad food twice a day, cleaning the house, shopping etc.
In January he went into the hospital with pneumonia and a uti. When he was discharged my boys and I moved in with him. He was way too unsteady to walk unassisted, using the washroom. Basically he couldn't do anything except eat on his own. From January through the end of March we had 2 more hospital stays for pneumonia. I came to the realization that I could not physically take care of him on my own while trying to care for my 3 young boys. So I did alot of research and decided he was better off in assisted living. There were falls etc.
So the end of March when he was discharged he went to a memory care assisted living. Since then he's declining so fast, he wears depends now, mood swings like a light switch. Fine one minute the next crying. Well the other week we called 911 as he had a fever, shallow breathing, stats were all over the place.
6 days in the hospital for pneumonia. So many tests scans,xrays, cultures. Well they did a swallow study and it turns out he has a very rare disorder. It took the dr 5 different Dr's to find anyone that had even HEARD of Killian-Jamieson Diverticulum.
It's basically an out pouch in the throat and very large. So food and fluids are being asperated into his lungs. Causing reoccurring pneumonia. The surgery is major and very risky, so I'm not going to pursue it.
I was told he probably has 3 to 6 months left and pneumonia will be what takes his life.
I feel like the worst daughter in the world, since he got back to the home I've only been twice. I can't stand to look at him in this horrible state and know time is limited. All I do is think about the impending doom that will be here all to fast. I cry multiple times a day. All I keep thinking is next year I will be 40 with no parents. It's killing me.
It's so hard to see such an strong independent man, so frail, so lost. I'm not sure how to deal with this.
Apologies if there are errors as I'm on my phone.
In January he went into the hospital with pneumonia and a uti. When he was discharged my boys and I moved in with him. He was way too unsteady to walk unassisted, using the washroom. Basically he couldn't do anything except eat on his own. From January through the end of March we had 2 more hospital stays for pneumonia. I came to the realization that I could not physically take care of him on my own while trying to care for my 3 young boys. So I did alot of research and decided he was better off in assisted living. There were falls etc.
So the end of March when he was discharged he went to a memory care assisted living. Since then he's declining so fast, he wears depends now, mood swings like a light switch. Fine one minute the next crying. Well the other week we called 911 as he had a fever, shallow breathing, stats were all over the place.
6 days in the hospital for pneumonia. So many tests scans,xrays, cultures. Well they did a swallow study and it turns out he has a very rare disorder. It took the dr 5 different Dr's to find anyone that had even HEARD of Killian-Jamieson Diverticulum.
It's basically an out pouch in the throat and very large. So food and fluids are being asperated into his lungs. Causing reoccurring pneumonia. The surgery is major and very risky, so I'm not going to pursue it.
I was told he probably has 3 to 6 months left and pneumonia will be what takes his life.
I feel like the worst daughter in the world, since he got back to the home I've only been twice. I can't stand to look at him in this horrible state and know time is limited. All I do is think about the impending doom that will be here all to fast. I cry multiple times a day. All I keep thinking is next year I will be 40 with no parents. It's killing me.
It's so hard to see such an strong independent man, so frail, so lost. I'm not sure how to deal with this.
Apologies if there are errors as I'm on my phone.
