Hi
Mum was put on an end of life care plan last week and we are devastated although we knew that this day would come as she has deteriorated since entering the CH in December last year.
SALT have now said that she needs her drinks thickening which is like feeding her jelly! She is still eating a little although being fed. She is awake and talking although incoherent most of the time. We have decided that it is best for her to remain in the care home where she is comfortable and familiar.
The GP cannot tell us how long it will be before she passes, but as she is almost skeletal with no quality of life we are praying it will be soon we could not bear it if she were to linger for long in this state.
We sit with her and chat about our childhood and hers and she can hear but looks at you with that blank stare.
What is really upsetting is that she still keeps asking Can I go now and saying I want my mum. Last night when I stood up she said dont go and leave me as plain as anything I stayed until she had her night meds and was asleep. Is this normal that suddenly from being incoherent they will make perfect sense at this late stage. Mum also has MS and currently her body is very rigid and she is having difficulty swallowing.moving and speaking all of which could be MS or dementia. When we arrived she was staring into the corner of the room talking incoherently and didn't appear to recognise us although she held my hand tightly and wouldn't let go.
Has anyone else had experience of this?
Thank you
Mum was put on an end of life care plan last week and we are devastated although we knew that this day would come as she has deteriorated since entering the CH in December last year.
SALT have now said that she needs her drinks thickening which is like feeding her jelly! She is still eating a little although being fed. She is awake and talking although incoherent most of the time. We have decided that it is best for her to remain in the care home where she is comfortable and familiar.
The GP cannot tell us how long it will be before she passes, but as she is almost skeletal with no quality of life we are praying it will be soon we could not bear it if she were to linger for long in this state.
We sit with her and chat about our childhood and hers and she can hear but looks at you with that blank stare.
What is really upsetting is that she still keeps asking Can I go now and saying I want my mum. Last night when I stood up she said dont go and leave me as plain as anything I stayed until she had her night meds and was asleep. Is this normal that suddenly from being incoherent they will make perfect sense at this late stage. Mum also has MS and currently her body is very rigid and she is having difficulty swallowing.moving and speaking all of which could be MS or dementia. When we arrived she was staring into the corner of the room talking incoherently and didn't appear to recognise us although she held my hand tightly and wouldn't let go.
Has anyone else had experience of this?
Thank you