I posted this in the main area but I suspect most of my time will be here so am posting it again, here. It makes sense to me anyway!!! 
my name is wayne so either nickname chewtor or real name wayne will be great. I was finally diagnosed with mixed dementia, vascular and Alzheimer's on jan 13th after 7 years of feeling/noticing things were not quite as they should be. at the hour long meeting with consultant and care co-ordinator I guess that I fazed out after about 15 minutes trying to take it all in. relief that at last I had a reason but also fear kicked. I eventually stopped them talking at me and said I needed time to think before talking about groups etc and we adjourned for 2 weeks, or so I thought. my mum had Alzheimer's and 'lived', if that applies, for about 4 years after the diagnosis which had taken about 4 years but she was 69 by the time of diagnosis. I kind of hope for longer as I am 60 now but am 7 years down the long and winding road.
due to various situations and circumstances I do not have family around me to talk with so my head was still a bit spinny when the 2 week later meeting came around and it did not help any. a new person not at the first and seemingly only really interested in testing me yet again nad answered most questions by 'I wiil have to see the consultant about that'. I am waitning for contact from their activity group and was given a mass of leaflets to read. the internet has helped some and scared the life our of me.
I guess that I am here so can ask questions when I know what to ask. it has taken me an age to write and check thid and another 10 minutes hovering over the submit button. somehow hitting the button makes it all real and more scary.
most of my time will be in the under 65 forum I suppose so this is just a long and rambling hello - time to bite the bullet and hit the button.................
my name is wayne so either nickname chewtor or real name wayne will be great. I was finally diagnosed with mixed dementia, vascular and Alzheimer's on jan 13th after 7 years of feeling/noticing things were not quite as they should be. at the hour long meeting with consultant and care co-ordinator I guess that I fazed out after about 15 minutes trying to take it all in. relief that at last I had a reason but also fear kicked. I eventually stopped them talking at me and said I needed time to think before talking about groups etc and we adjourned for 2 weeks, or so I thought. my mum had Alzheimer's and 'lived', if that applies, for about 4 years after the diagnosis which had taken about 4 years but she was 69 by the time of diagnosis. I kind of hope for longer as I am 60 now but am 7 years down the long and winding road.
due to various situations and circumstances I do not have family around me to talk with so my head was still a bit spinny when the 2 week later meeting came around and it did not help any. a new person not at the first and seemingly only really interested in testing me yet again nad answered most questions by 'I wiil have to see the consultant about that'. I am waitning for contact from their activity group and was given a mass of leaflets to read. the internet has helped some and scared the life our of me.
I guess that I am here so can ask questions when I know what to ask. it has taken me an age to write and check thid and another 10 minutes hovering over the submit button. somehow hitting the button makes it all real and more scary.
most of my time will be in the under 65 forum I suppose so this is just a long and rambling hello - time to bite the bullet and hit the button.................
