Drugs list
Craig and Sarah, thanks for listing the drugs. That makes things much easier. Deborah
Craig and Sarah, thanks for listing the drugs. That makes things much easier. Deborah
MPs to examine the prescribing of neuroleptics
- Thread starter Sarah Thomas
- Start date
Transcripts of oral evidence sessions available
Dear All
Just to let you all know that transcripts of the oral evidence sessions have been published. You can view them on the Alzheimer's Society website at:
http://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200312
Kind regards
Sarah
Dear All
Just to let you all know that transcripts of the oral evidence sessions have been published. You can view them on the Alzheimer's Society website at:
http://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200312
Kind regards
Sarah
Well I've just plowed through the first days testimony and one thing that really rang true was part of Dr Graham Stokes, Head of Mental Health, BUPA Care Services testimony
"People inevitably are going to be complex in their presentation because (1) dementia is degenerative and (2) it is the sole disability where the person with the disability does not know they have the disability. The tragedy of dementia is that when a person with dementia knows they need us they need us least; when they need us most they know they do not need us at all. They have to accept intimate care at a time when they do not need it. For me that is an explanation for so much aggression that is not symptomatic of the pathology, that is, the life this person is having to endure. "
Really, when you think about it, it's not remarkable that people get aggressive: what's remarkable is that not everyone gets aggressive.
"People inevitably are going to be complex in their presentation because (1) dementia is degenerative and (2) it is the sole disability where the person with the disability does not know they have the disability. The tragedy of dementia is that when a person with dementia knows they need us they need us least; when they need us most they know they do not need us at all. They have to accept intimate care at a time when they do not need it. For me that is an explanation for so much aggression that is not symptomatic of the pathology, that is, the life this person is having to endure. "
Really, when you think about it, it's not remarkable that people get aggressive: what's remarkable is that not everyone gets aggressive.
It's a Act of Rights which is required not waffle!!!
Its all very well running a sexy campaign on drugs to become a well known group such as cancer groups have become well known, but what of the real cost to the people with dementia.
Is anyone brave enough to charge a doctor and or a care home with assault? Well what else is a chemical/drug used to keep someone quiet but assault?
The lack of human rights for self-funders is that any action would mean the resident being evicted, and yes the social services wouldn’t what to know.
Of course there are many other issues which you can raise with a care home and also be evicted for.
The answer is human rights for self funded people in care homes.
The right conferred through a Human Right Act through the Health and Social Care Act.
The Health and Social Care Bill will now be going through the Lords committee meetings and then back to the Commons etc: plenty of time to get human right for self funders.
See link for Lords Hansard transcript of the debate on the Health and Social Care Bill on the 25 March 2007. Look particularly at comments made by Baroness Greengross and Baroness Howe: columns 528-530. from the begining or http://www.publications.parliament.uk/pa/ld200708/ldhansrd/text/80325-0013.htm
Write to your local MP and make sure the issues of human rights for self funder are on the agenda and in the Act.
Yours fraternally
Its all very well running a sexy campaign on drugs to become a well known group such as cancer groups have become well known, but what of the real cost to the people with dementia.Is anyone brave enough to charge a doctor and or a care home with assault? Well what else is a chemical/drug used to keep someone quiet but assault?
The lack of human rights for self-funders is that any action would mean the resident being evicted, and yes the social services wouldn’t what to know.
Of course there are many other issues which you can raise with a care home and also be evicted for.
The answer is human rights for self funded people in care homes.
The right conferred through a Human Right Act through the Health and Social Care Act.
The Health and Social Care Bill will now be going through the Lords committee meetings and then back to the Commons etc: plenty of time to get human right for self funders.
See link for Lords Hansard transcript of the debate on the Health and Social Care Bill on the 25 March 2007. Look particularly at comments made by Baroness Greengross and Baroness Howe: columns 528-530. from the begining or http://www.publications.parliament.uk/pa/ld200708/ldhansrd/text/80325-0013.htm
Write to your local MP and make sure the issues of human rights for self funder are on the agenda and in the Act.
Yours fraternally
Apologies for taking this slightly off course, in post #23 Jennifer quotes some of Dr. Graham Stokes testimony:
I was fortunate enough to attend twice to different days organised by our local Carer's Services when we had Dr. Stokes as speaker for the whole day.
Completely changed my perception of how to care for someone with dementia, and how their mind could be working. Marvellous man. He has written several books, although they are basically aimed at carers within care homes.
Excellent reading though.
I was fortunate enough to attend twice to different days organised by our local Carer's Services when we had Dr. Stokes as speaker for the whole day.
Completely changed my perception of how to care for someone with dementia, and how their mind could be working. Marvellous man. He has written several books, although they are basically aimed at carers within care homes.
Excellent reading though.
Report came out today:
http://news.bbc.co.uk/1/hi/health/7366416.stm
The MPs propose a five-point plan to address the issue for inclusion in the government's National Dementia Strategy, due to be published later this year.
Great to get this out in the open and in the news and I thank the alzheimers society for their continuous campaigning.
My only regret is they did not mention more training for GPs. It was the GP in our case that allowed haloperidol to be prescribed to my dad. It was totally inappropriate, the GP should have known better and I'm sure this happens all the time. Guidelines for GPs in this area is so important, it is not just care homes at fault which the report suggests.
Just my thoughts
Craig
http://news.bbc.co.uk/1/hi/health/7366416.stm
The MPs propose a five-point plan to address the issue for inclusion in the government's National Dementia Strategy, due to be published later this year.
- Specialist dementia training for all care home staff
- Families to be involved in all decisions about giving the drugs
- More support for care home staff from GPs, psychiatrists and psychiatric nurses
- Compulsory patient reviews every 12 weeks
- A cost-effectiveness review by NICE, the National Institute of Health and Clinical Excellence and a national audit by the Care Quality Commission, which supervises care homes
Great to get this out in the open and in the news and I thank the alzheimers society for their continuous campaigning.
My only regret is they did not mention more training for GPs. It was the GP in our case that allowed haloperidol to be prescribed to my dad. It was totally inappropriate, the GP should have known better and I'm sure this happens all the time. Guidelines for GPs in this area is so important, it is not just care homes at fault which the report suggests.
Just my thoughts
Craig
Thank you
Thank you Craig for posting details of where to obtain a copy of the report.
On behalf of the All-Party Parliamentary Group on Dementia thank you to everyone who gave evidence to the inquiry.
Thank you Craig for posting details of where to obtain a copy of the report.
On behalf of the All-Party Parliamentary Group on Dementia thank you to everyone who gave evidence to the inquiry.
