The link below was posted by the Alz soc in the Guardian newspaper, your comments would be most apprediated, please click on Bottom link to see what i am talking about
HOW RIDICULOUS !! I LIVE WITH Dementia, and i like to think i live quite well with it, but there are so many people out there in Late stages who SUFFER from this, my own grandmother and my father were bedridden , confused, upset angry, embarrassed, had terrible hallucinations, loss of reality and upset when couldnt understand what was going on, are you trying to tell the world they were not suffering ?? Goodness SAKE !! lets get a grip on reality here, and get back to COMMON sense !!
If you are in early stages, or mid stages and coping ok you are living with dementia, in later stages when this horrible disease takes hold, ruins your life and robs you of your mind, THEN TRY TO TELL ME they are NOT SUFFERING!!!!
Tts not very often i post about another "Dementia Charity's" wordage or views as its always taken as " petty "(though its never intended that way i may add) but this was a step TOO FAR. I am not blaming all, just the very misguided person who wrote this and was SO PRESUMPTUOUS that he / she thought they could speak for all carers and of people who have this terrible disease , where do they get off thinking they have the right to speak for us and TELL US what to say and not to say ??
What happened to the very great Phrase
"When You Have met ONE person With dementia "
"You Have met ONE person with dementia "
Or would they rather us all follow them like sheep instead of using our own common sense in what to say ???
As you have probably guessed, not happy about this one !! xxxxxxxxxxx
https://www.facebook.com/alzheimers....8270524646/10153669215994647/?type=3&theater
HOW RIDICULOUS !! I LIVE WITH Dementia, and i like to think i live quite well with it, but there are so many people out there in Late stages who SUFFER from this, my own grandmother and my father were bedridden , confused, upset angry, embarrassed, had terrible hallucinations, loss of reality and upset when couldnt understand what was going on, are you trying to tell the world they were not suffering ?? Goodness SAKE !! lets get a grip on reality here, and get back to COMMON sense !!
If you are in early stages, or mid stages and coping ok you are living with dementia, in later stages when this horrible disease takes hold, ruins your life and robs you of your mind, THEN TRY TO TELL ME they are NOT SUFFERING!!!!
Tts not very often i post about another "Dementia Charity's" wordage or views as its always taken as " petty "(though its never intended that way i may add) but this was a step TOO FAR. I am not blaming all, just the very misguided person who wrote this and was SO PRESUMPTUOUS that he / she thought they could speak for all carers and of people who have this terrible disease , where do they get off thinking they have the right to speak for us and TELL US what to say and not to say ??
What happened to the very great Phrase
"When You Have met ONE person With dementia "
"You Have met ONE person with dementia "
Or would they rather us all follow them like sheep instead of using our own common sense in what to say ???
As you have probably guessed, not happy about this one !! xxxxxxxxxxx
https://www.facebook.com/alzheimers....8270524646/10153669215994647/?type=3&theater