Hi ..
Some of you will remember that I posted in April 2012, when my Father, died asking for advice on how to deal with his passing with my Mum..
'Potted history'
At that time Mum had not had a diagnosis but we were in the process...
She had the memory test and failed with a total score of about 3 and so went for the scan and was then diagnosed with mixed Dementia (A.D. and Vasc.D.)
I have been her 24/7 carer since then and later got some Sitting vouchers, 4 hours/week. I needed time out to do some shopping and an hour to myself and found Age-UK had a daycare which catered very well for Dementia and progressed to 3 hours incl. lunch thus giving me a short break as I could not go out during the 'sits' due to Health and Safety concerns related to another longterm, unconnected, health issue which has become potentially life-threatening over the last couple years.
Mum has slowly deteriorated over the 3 years since Father died but can still move around the house with supervision and will go to the toilet if encouraged although she is largely incontinent now..
she can feed herself and drinking is mostly no problem but I have to prepare everything..
She can no longer entertain herself as she used to with 'Wordsearch' but will do colouring books and childs Jigsaws with help and also enjoys playing catch with soft juggling balls and also playing Skittles..
Conversation is near impossible and she only knows that I love her, not who I am as a relative or any of the rest of the family... she is good natured and tries to please everyone and so needs company at all times in public places for safety...
Altogether I feel I am very lucky
-----------------
OK to get to the point ... I have learnt many things since my first time here and have also noticed that when her blood-pressure is higher over a period of time that she deteriorates noticably, or so it seems to me and Im not the only one to think this..
since the beginning of October it has slowly but surely risen.. and I have seen her apparently suffer less mental ability as the time goes on... She has been on Candasarten for a considerable time and nothing changed except this recent increase in BP..
I managed to get a call from the Doctor a week ago but she says that she wouldnt plan to do anything until the average BP was 150/90.. currently I think maybe 140/85 (up and down)
My question is:
'are there any Medical papers written, or reference pages at Dem.UK or here at Alz. Soc., which I could access, to possibly prove in my own mind or to even use as Reference for the Doctor, that there is evidence to support my casual, Carers, observation'
I dont feel as a layman I get listened to... and I dont want an 'oversight' to cause unneccassary damage
ty All for your time reading this 'Essay'
Some of you will remember that I posted in April 2012, when my Father, died asking for advice on how to deal with his passing with my Mum..
'Potted history'
At that time Mum had not had a diagnosis but we were in the process...
She had the memory test and failed with a total score of about 3 and so went for the scan and was then diagnosed with mixed Dementia (A.D. and Vasc.D.)
I have been her 24/7 carer since then and later got some Sitting vouchers, 4 hours/week. I needed time out to do some shopping and an hour to myself and found Age-UK had a daycare which catered very well for Dementia and progressed to 3 hours incl. lunch thus giving me a short break as I could not go out during the 'sits' due to Health and Safety concerns related to another longterm, unconnected, health issue which has become potentially life-threatening over the last couple years.
Mum has slowly deteriorated over the 3 years since Father died but can still move around the house with supervision and will go to the toilet if encouraged although she is largely incontinent now..
she can feed herself and drinking is mostly no problem but I have to prepare everything..
She can no longer entertain herself as she used to with 'Wordsearch' but will do colouring books and childs Jigsaws with help and also enjoys playing catch with soft juggling balls and also playing Skittles..
Conversation is near impossible and she only knows that I love her, not who I am as a relative or any of the rest of the family... she is good natured and tries to please everyone and so needs company at all times in public places for safety...
Altogether I feel I am very lucky
-----------------
OK to get to the point ... I have learnt many things since my first time here and have also noticed that when her blood-pressure is higher over a period of time that she deteriorates noticably, or so it seems to me and Im not the only one to think this..
since the beginning of October it has slowly but surely risen.. and I have seen her apparently suffer less mental ability as the time goes on... She has been on Candasarten for a considerable time and nothing changed except this recent increase in BP..
I managed to get a call from the Doctor a week ago but she says that she wouldnt plan to do anything until the average BP was 150/90.. currently I think maybe 140/85 (up and down)
My question is:
'are there any Medical papers written, or reference pages at Dem.UK or here at Alz. Soc., which I could access, to possibly prove in my own mind or to even use as Reference for the Doctor, that there is evidence to support my casual, Carers, observation'
I dont feel as a layman I get listened to... and I dont want an 'oversight' to cause unneccassary damage
ty All for your time reading this 'Essay'
Last edited: