Hello All
I have been following these forums for few months now and they have been extremely helpful especially because here in India, there is very little support or counselling for the caregivers from the doctors.
To cut the long story short, after the most recent stroke followed by seizures 7 weeks ago, my father's doctor and us decided he has reached the terminal stage and to continue palliative care at home. These strokes and seizures left him completely bed ridden and doubly incontinent.
It has been an emotional roller coaster to say the least. His food intake has gradually come down and for the last 15 days or so, he is just having either 2-3 spoons of ensure or yoghurt per meal. For the last 5 days, he is having even that just once a day.
Last week he seems to have some wierd sleep-awake cycles with being in deep sleep for 36-48 hours followed by 36 hours of being awake, agitated and restless. Since then, his intake has come down even more. Doctor suggested we give him ativan along with Risperidone at night to calm him so he will sleep. That seemed to have helped.. however, he is now completed knocked off not even waking up when we give sponge bath or change his diapers.
His urine output has significantly come down.
We are not sure what to expect.. and I feel guilty thinking this way but, how long should he hang like this..when he clearly has no quality of life?
I have been following these forums for few months now and they have been extremely helpful especially because here in India, there is very little support or counselling for the caregivers from the doctors.
To cut the long story short, after the most recent stroke followed by seizures 7 weeks ago, my father's doctor and us decided he has reached the terminal stage and to continue palliative care at home. These strokes and seizures left him completely bed ridden and doubly incontinent.
It has been an emotional roller coaster to say the least. His food intake has gradually come down and for the last 15 days or so, he is just having either 2-3 spoons of ensure or yoghurt per meal. For the last 5 days, he is having even that just once a day.
Last week he seems to have some wierd sleep-awake cycles with being in deep sleep for 36-48 hours followed by 36 hours of being awake, agitated and restless. Since then, his intake has come down even more. Doctor suggested we give him ativan along with Risperidone at night to calm him so he will sleep. That seemed to have helped.. however, he is now completed knocked off not even waking up when we give sponge bath or change his diapers.
His urine output has significantly come down.
We are not sure what to expect.. and I feel guilty thinking this way but, how long should he hang like this..when he clearly has no quality of life?
