Applying for NHS Continuing Health Care

Gg2

Registered User
Jul 19, 2014
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Who am I best to speak to about this? The GP at the home dad was in? Or someone from the NHS?


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AlsoConfused

Registered User
Sep 17, 2010
1,952
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Beacon Continuing Healthcare (0345 548 0300) are mentioned by Age UK as specialists in CHC issues. They offer up to 90 mins free advice. Would it be worth giving them a ring?
 

katek

Registered User
Jan 19, 2015
191
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Thank you that has given me a lot to think about. I have an apt with GP next week to discuss his advice as I feel this was misinterpreted. We are also asking for a new referral to the mental health team as I think their input is now required.

That's good that you have an appointment on your father's behalf with his GP to discuss the whole issue of sedating and the risks. Do you know what your father would have thought about it?

The way I look at it, sedating should not be used lightly and only as a last resort. Surely if you have to sedate someone, that means their behaviour is pretty severe, yet the CCG have said at the same time that your father's behaviour is not that severe, as they have refused CHC!!! They can't have it both ways!!! Oh, sorry.. they can ...usual logic and fairness do not apply - they make their own rules to suit themselves.

When you see the GP, try and get as much info as you can which you can use at Appeal. The bottom line should be -
If he is so bad that he has to be sedated (against both GP's advice and your wishes) then that in itself is evidence that his behaviour is 'Severe' and warrants CHC (not just FNC which only accounts for about 10% of NH fees). He should not be self-funding this forced treatment.
 
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Tot

Registered User
Sep 15, 2013
14
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It can be done.

My dad has mixed dementia and has been in a CH for the past 15 months. Recently we were advised by the care home that he would require nursing care due to his challenging behaviour and that we should now apply for NHS continuing health care due to his needs. SS have completed their assessment and put him forward to NHS who will be completing another one this week. Can anyone give me any advise on this? Dad was falling frequently until this week when he has been unable to get out of bed and he is frequently aggressive.

We have just got full NHS funding for our father. We spent a long time getting to understand the process and found examples and instances to fulfill the levels of each domain on the NHS Continuing Healthcare checklists, in short we really did our homework. We were also present at every meeting about our father. Luckily there are 2 x daughters so we were able to share the load. We kept a record of all his falls and made sure that the care home did too. We also made sure that his weight was regularly recorded. At the meeting with social services and the district nurse we were determined to stand our ground. It was all hard work, time consuming but worth it. We did it for Dad. But it can be done.
 

Nancyf68

Registered User
Aug 16, 2015
14
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It's now been two weeks since I was given a verbal response to dads application and I still have not received the written report or details on how to appeal! Has anyone else experienced this?
 

Nancyf68

Registered User
Aug 16, 2015
14
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I would think that there should be something in writing. After two weeks it probably makes sense to chase them up.

I called last week and was advised that it can take weeks. Was just wondering if anyone else had this problem and whether there was any guidelines re response time?
On a positive the GP has confirmed that he did not tell the chc team he would prescribe sedation if there was someone qualified to administer and will be providing a letter confirming he will not prescribe in any circumstances due to high risk of falls.
 

stanleypj

Registered User
Dec 8, 2011
10,712
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North West
I called last week and was advised that it can take weeks. Was just wondering if anyone else had this problem and whether there was any guidelines re response time?
On a positive the GP has confirmed that he did not tell the chc team he would prescribe sedation if there was someone qualified to administer and will be providing a letter confirming he will not prescribe in any circumstances due to high risk of falls.

So they were misled about that? That could be quite significant I should think.
 

popplestone04

Registered User
Sep 8, 2015
1
0
Admission to hospital under mental health act section 3

We have been told that my husband will qualify for continuing care as he has been re-sectioned for up to 6 months.

Is this automatic? I am being pressurised to look for care homes not by the hospital)even though he is not at all stable.

I have found the whole sectioning process,and the lead up to it so disturbing that any extra hassle is almost unbearable.

However I must say that the hospital care of my husband is excellent and the staff are caring and very friendly.

I would like a clear picture about the whole proceedure
 

AlsoConfused

Registered User
Sep 17, 2010
1,952
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Hi popplestone

I think TP members more likely than me to know have said it's automatic that anyone who's been sectioned as your husband Dad was is entitled to CHC forever.

If your husband isn't medically stable then I think the hospital can't discharge him. A change to his environment would further destabilise him; also how could the nursing home assess whether they could meet his needs?
 

alyfen

Registered User
Sep 25, 2016
28
0
2 MDT meetings still no decision

Feeling empathy with you all. Unlike many on here the hospital did the DST after Mum had been in 3 weeks. She had 1 sever 2 high and the rest moderate. They didn't explain what it was about but we knew enough to follow it. They said she was borderline. They then did it again after 5 weeks but stopped before they made a recommendation because - & this is the funny part - she wasn't very well that day and they thought they'd better ask a Dr if she needed any medical intervention! The 2nd time mental health were involved as her behaviour is now challenging as well as limited mobility; risk of falls; incontinent; unable to communicate reliably oh & she has a well managed skin complaint as well as a pressure sore. Hopefully today she will be assessed by a care home and they will do DST again soon I'll let you know how I get on with CHC but I am not hopeful. Hubby says we must fight but I just can't bear the hassle.
 

alyfen

Registered User
Sep 25, 2016
28
0
CHC has been recommended!

Feeling empathy with you all. Unlike many on here the hospital did the DST after Mum had been in 3 weeks. She had 1 sever 2 high and the rest moderate. They didn't explain what it was about but we knew enough to follow it. They said she was borderline. They then did it again after 5 weeks but stopped before they made a recommendation because - & this is the funny part - she wasn't very well that day and they thought they'd better ask a Dr if she needed any medical intervention! The 2nd time mental health were involved as her behaviour is now challenging as well as limited mobility; risk of falls; incontinent; unable to communicate reliably oh & she has a well managed skin complaint as well as a pressure sore. Hopefully today she will be assessed by a care home and they will do DST again soon I'll let you know how I get on with CHC but I am not hopeful. Hubby says we must fight but I just can't bear the hassle.
Can't quite believe it but they told us today. We're not quite sure how this will help us find somewhere suitable for Mum but it's one less thing to worry about. Now I just need to find a care home that will take her either in her home are or near us. None have vacancies! Does anyone have any experience of how CHC funding works?