We have created a
page on the website with information from the Society for those who have viewed the documentary.
What an excellent factsheet, said, very comprehensive. Congratulations to all concerned. I intend to print it off and take a copy to John's home.
I must say, after the programme, my respect for the team caring for John has grown even greater.
John was put on quetiapine when admitted to hospital, because of the aggression caused bu his infection. As soon as he was transferred to his EMI home, the charge nurse said that he would like to take John off it as soon as possible, as it was not their policy to use these drugs. John's now off it.
However, I also have to say that there is no real improvement (so far) in his condition, so I reluctantly have to conclude that his lethargy is caused by the progression of his illness, rather than purely the effect of the drugs.
Those of you feeling guilty, please don't. Dementia does that to people, and there's really no way of knowing how much is down to the drugs, and how much is natural progression.