Been a while since I was on here, but I am in crisis. Mum has Alzheimer's for the last 8years, she is 85. I am an only child and packed up work 1 year ago to help Dad(82) to look after her at home as he refused to see her go into a home even for rest bite , they have been together for 60 years. The whole issue of care packages and homes are a no no with Dad, and last year reached a crisis, but have to say we got into a new routine with meds like Risperidone, Lorezapin, Aricept to cope with the Sundowning, aggravation and anxiety Mum was having.
Each day was a challenge , but we got through. however welfare wise things have not been good and for months have suggested we need help as Dad despite all best efforts is not coping again. The answer again was no so I stayed with them even longer , 6 days a week 9 hours a day. Then on Saturday dismayed struck when I wasn't there, Mum unbeknown to my Dad had gone out the front door and fell.
Within half an hour we were in an abundance on the way to A&E at this point Mum was quiet coherent chatting to the ambulance staff and was certainly aware.
She was x rayed and told she had a fractured pelvis, and also a water infection. They put her onto a ward that night and dad and I stayed with her. In the morning the Drs came to see her said they would be looking to manage her pain, and then in a week or so look at some physio. They were made very aware of Mums Alzheimer's. And what gad been happening aT home. They said that the following day a Care team would come in and see Mum and discuss with us, the options going fwd. then all out of the blue at 3:00' the senior nurse came you d and said Mum was being moved to an other hospital that afternoon. The hospital would be a rehabilitation ward. At this point Mum was so deep in sleep that I said I didn't want her moved but they insisted. There were 4 medical people shouting Mums name to try and wake her they could get any response and again I said I wanted her blood pressure and pulse checked before she was to be moved. They did this as said all was ok.
We then went down with hefty patient transport where we waited 4hours in which time mum rallied but became very confused.
My saga goes on and gets worse as she has now been in the rehabilitation ward for 3 days , despite telling the staff on admission Mum does not take her tablets very well and needs support, I went in the following morning only to find they had given up trying to administer her Meds.
I am now in the ward from 10:00 till 18:00 and then returning at 22:00 trying to feed her, give her the meds myself which is working. However she is almost in a permanent sleep, they ran out of antibiotics yesterday so has not really had more than1 days treatment for water infection, she is severely constipated, but again unless I am there will not get the ."opening meds " in her.
They have changed all her normal meds around, leaving her poor body, mind and dear I say in Soul absolutely lost.
Yesterday I had meetings with the Chief Nursinging officer on the ward, the consultant , the doctor and each time they change what the other ones course of action is.
Meanwhile I feel I am loosing my Mum because either they don't understand or just feel she shouldn't have been sent to them
Along with this my poor Dad is distraught he doesn't understand any of this, and to be honest nor do I .
I need help for my Mum or else I am going to loose her, because in the midst of all this pain managemt is going out the window. They even said they may give her a morphine liquid for pain, IF SHE ASKS FOR IT? Does this sound like a team that understands Alzheimer's.
Please please help
Each day was a challenge , but we got through. however welfare wise things have not been good and for months have suggested we need help as Dad despite all best efforts is not coping again. The answer again was no so I stayed with them even longer , 6 days a week 9 hours a day. Then on Saturday dismayed struck when I wasn't there, Mum unbeknown to my Dad had gone out the front door and fell.
Within half an hour we were in an abundance on the way to A&E at this point Mum was quiet coherent chatting to the ambulance staff and was certainly aware.
She was x rayed and told she had a fractured pelvis, and also a water infection. They put her onto a ward that night and dad and I stayed with her. In the morning the Drs came to see her said they would be looking to manage her pain, and then in a week or so look at some physio. They were made very aware of Mums Alzheimer's. And what gad been happening aT home. They said that the following day a Care team would come in and see Mum and discuss with us, the options going fwd. then all out of the blue at 3:00' the senior nurse came you d and said Mum was being moved to an other hospital that afternoon. The hospital would be a rehabilitation ward. At this point Mum was so deep in sleep that I said I didn't want her moved but they insisted. There were 4 medical people shouting Mums name to try and wake her they could get any response and again I said I wanted her blood pressure and pulse checked before she was to be moved. They did this as said all was ok.
We then went down with hefty patient transport where we waited 4hours in which time mum rallied but became very confused.
My saga goes on and gets worse as she has now been in the rehabilitation ward for 3 days , despite telling the staff on admission Mum does not take her tablets very well and needs support, I went in the following morning only to find they had given up trying to administer her Meds.
I am now in the ward from 10:00 till 18:00 and then returning at 22:00 trying to feed her, give her the meds myself which is working. However she is almost in a permanent sleep, they ran out of antibiotics yesterday so has not really had more than1 days treatment for water infection, she is severely constipated, but again unless I am there will not get the ."opening meds " in her.
They have changed all her normal meds around, leaving her poor body, mind and dear I say in Soul absolutely lost.
Yesterday I had meetings with the Chief Nursinging officer on the ward, the consultant , the doctor and each time they change what the other ones course of action is.
Meanwhile I feel I am loosing my Mum because either they don't understand or just feel she shouldn't have been sent to them
Along with this my poor Dad is distraught he doesn't understand any of this, and to be honest nor do I .
I need help for my Mum or else I am going to loose her, because in the midst of all this pain managemt is going out the window. They even said they may give her a morphine liquid for pain, IF SHE ASKS FOR IT? Does this sound like a team that understands Alzheimer's.
Please please help
