Im just 53 and was diagnosed vascular dementia just 1 week ago, after 14 months of tests. The thing is I don't believe the doctors at the hospital that I have and also keep wondering if I heard them right! My partner was with me and he said that is what they said. They offered me a nurse for a couple of months, I dont know what for ? I have to go back next month and start lots of new medication. But I cannot accept the diagnosis, is it me? or do others feel the same, any advice greatly appreciated, thankyou
just diagnosed at 53
- Thread starter seagull50
- Start date
Hello seagull
In the early days following a diagnosis, when you don`t feel too bad, a diagnosis of vascular dementia is hard to believe and even harder to accept. .
I really don`t think you are the only one .
I don`t know if the AS fact sheet will help until others with the illness come on to the forum but it is here if you feel inclined to read it.
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=122
In the early days following a diagnosis, when you don`t feel too bad, a diagnosis of vascular dementia is hard to believe and even harder to accept. .
I really don`t think you are the only one .
I don`t know if the AS fact sheet will help until others with the illness come on to the forum but it is here if you feel inclined to read it.
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=122
Hi Seagull
Hello and welcome to TP.
I'm sorry to read about your diagnosis. It must be very difficult in the first few weeks after diagnosis. I think it might be good to accept the help of the nurse for the month. You'll be able to talk to her and ask questions etc.
Hello and welcome to TP.
I'm sorry to read about your diagnosis. It must be very difficult in the first few weeks after diagnosis. I think it might be good to accept the help of the nurse for the month. You'll be able to talk to her and ask questions etc.
I was diagnosed with Alzheimers back in July at 58. It's always traumatic to hear a diagnosis of any dementia. I went to my Gp and sat down with her and went through the letter the hospital had sent her and she explained it to me. Your Gp should be able to confirm exactly what the hospital have said if you're at all unsure. We only take in a fraction of what's said when you're sat in front of a specialist. Hope this helps. There's lots of help out there to support you and Talking Point is always here
arm pain and stiffness
Im newly diagnosed vascular dementia before I received this diagnosis I have suffered for the past year with what the consultant told me was a frozen shoulder, but its gradually getting weaker and weaker and I cannot do much with it at all. This is so frustrating when you have to rely on others to help you dress. Im wondering now if it is not in fact frozen shoulder but another symptom maybe of the vascular dementia? I was wondering if anyone else had experienced this, im 53. Thankyou for any light on this.
Im newly diagnosed vascular dementia before I received this diagnosis I have suffered for the past year with what the consultant told me was a frozen shoulder, but its gradually getting weaker and weaker and I cannot do much with it at all. This is so frustrating when you have to rely on others to help you dress. Im wondering now if it is not in fact frozen shoulder but another symptom maybe of the vascular dementia? I was wondering if anyone else had experienced this, im 53. Thankyou for any light on this.
we are here for you I couldnt believe my eyes when I saw it on my sicknote
my GP was brilliant hope yours will be supportive
much support
Sarah
my GP was brilliant hope yours will be supportive
much support
Sarah
I havnt heard this as a sympton but saying that I have a really bad shoulder but the GP thinks its a torn rotor cuff
hope yours improves
hope mine does too!
hope yours improves
hope mine does too!
My daughter has a similar problem,some days it's worse than others. Last diagnosis after x Ray was that she had small pieces of calcium forming which were puncturing the muscles in both arms.She was given a steroid injection to relieve pain,and attends physiotherapy at the local hospital.I hope the Doctors can find the cause of your pain and start treatment if necessary.
quite ironic I keep forgetting how to use this site oops!
oh dear I keep forgetting how to post threads, it takes me ages to work it out each time, please tell me im not alone? You have to laugh at yourself sometimes I guess as it is quite ironic, still I feel stupid!
I am newly diagnosed at 53, just 53. vascular dementia. I have a mentally and physically handicapped son who is now 27. Ive suffered 2 nervous breakdowns over the years, the 1st when my son was just 6 and the 2nd ten years ago. My whole life seems to have been just 1 stress mountain for want of a better word! fighting social services, schools & health professionals for my son, im sure plenty of others in my position will know this process too well! its like climbing a mountain in your slippers! and I really do know it could have been much worse, but knowing that not helped me loads, im sorry for that. Had high blood pressure for as long as I can remember, and thats is what they say has caused this VD. maybe, maybe not.
I read once " god only ever gives you what he thinks you can cope with" and I want to scream now " its a joke" I found happiness at last just 2 years ago with a wonderful man and now Im tested further, some of the time I feel im going to do everything and anything before this thing stops me, and other times I just want to give up. thankyou for hearing me x
oh dear I keep forgetting how to post threads, it takes me ages to work it out each time, please tell me im not alone? You have to laugh at yourself sometimes I guess as it is quite ironic, still I feel stupid!
I am newly diagnosed at 53, just 53. vascular dementia. I have a mentally and physically handicapped son who is now 27. Ive suffered 2 nervous breakdowns over the years, the 1st when my son was just 6 and the 2nd ten years ago. My whole life seems to have been just 1 stress mountain for want of a better word! fighting social services, schools & health professionals for my son, im sure plenty of others in my position will know this process too well! its like climbing a mountain in your slippers! and I really do know it could have been much worse, but knowing that not helped me loads, im sorry for that. Had high blood pressure for as long as I can remember, and thats is what they say has caused this VD. maybe, maybe not.
I read once " god only ever gives you what he thinks you can cope with" and I want to scream now " its a joke" I found happiness at last just 2 years ago with a wonderful man and now Im tested further, some of the time I feel im going to do everything and anything before this thing stops me, and other times I just want to give up. thankyou for hearing me x
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Cant even remember how to post threads, have to chuckle I suppose
just realised also I had to subscribe so people could reply if they wanted too :confused
oh dear I keep forgetting how to post threads, it takes me ages to work it out each time, please tell me im not alone? You have to laugh at yourself sometimes I guess as it is quite ironic, still I feel stupid!
I am newly diagnosed at 53, just 53. vascular dementia. I have a mentally and physically handicapped son who is now 27. Ive suffered 2 nervous breakdowns over the years, the 1st when my son was just 6 and the 2nd ten years ago. My whole life seems to have been just 1 stress mountain for want of a better word! fighting social services, schools & health professionals for my son, im sure plenty of others in my position will know this process too well! its like climbing a mountain in your slippers! and I really do know it could have been much worse, but knowing that not helped me loads, im sorry for that. Had high blood pressure for as long as I can remember, and thats is what they say has caused this VD. maybe, maybe not.
I read once " god only ever gives you what he thinks you can cope with" and I want to scream now " its a joke" I found happiness at last just 2 years ago with a wonderful man and now Im tested further, some of the time I feel im going to do everything and anything before this thing stops me, and other times I just want to give up. thankyou for hearing me
just realised also I had to subscribe so people could reply if they wanted too
:confusedoh dear I keep forgetting how to post threads, it takes me ages to work it out each time, please tell me im not alone? You have to laugh at yourself sometimes I guess as it is quite ironic, still I feel stupid!
I am newly diagnosed at 53, just 53. vascular dementia. I have a mentally and physically handicapped son who is now 27. Ive suffered 2 nervous breakdowns over the years, the 1st when my son was just 6 and the 2nd ten years ago. My whole life seems to have been just 1 stress mountain for want of a better word! fighting social services, schools & health professionals for my son, im sure plenty of others in my position will know this process too well! its like climbing a mountain in your slippers! and I really do know it could have been much worse, but knowing that not helped me loads, im sorry for that. Had high blood pressure for as long as I can remember, and thats is what they say has caused this VD. maybe, maybe not.
I read once " god only ever gives you what he thinks you can cope with" and I want to scream now " its a joke" I found happiness at last just 2 years ago with a wonderful man and now Im tested further, some of the time I feel im going to do everything and anything before this thing stops me, and other times I just want to give up. thankyou for hearing me
I am sorry no-one answered your thread,
Any new site is difficult to follow I hope you get used to it
You are definitely not alone, I am sorry to hear about your diagnosis at such a young age,
It sounds as though you have your hands full with your son,you are bound to have up and down days,
I am pleased you have found a lovely partner, to share your life with, enjoy it as much as you can,
" god only ever gives you what he thinks you can cope with" as you say is so very hard to believe sometimes isn't it,
Best wishes and I hope this site is useful to you,
Jeany x
Any new site is difficult to follow I hope you get used to it
You are definitely not alone, I am sorry to hear about your diagnosis at such a young age,
It sounds as though you have your hands full with your son,you are bound to have up and down days,
I am pleased you have found a lovely partner, to share your life with, enjoy it as much as you can,
" god only ever gives you what he thinks you can cope with" as you say is so very hard to believe sometimes isn't it,
Best wishes and I hope this site is useful to you,
Jeany x
Hello seagull
I`m going to move all your posts together in one Thread in the `I have dementia` sub forum.
When I have done this I will send you a link .
When you are on your Thread , go to the blue bar at the top of the page.
Click on Thread tools and a drop down box will allow you to subscribe to your Thread
Then you will be able to find it whenever you need it.
I hope this helps.
I`m going to move all your posts together in one Thread in the `I have dementia` sub forum.
When I have done this I will send you a link .
When you are on your Thread , go to the blue bar at the top of the page.
Click on Thread tools and a drop down box will allow you to subscribe to your Thread
Then you will be able to find it whenever you need it.
I hope this helps.
thankyou for showing me kindness
thankyou so much had a major meltdown today 1st time Ive cried since being told, thankyou for just being there everybody x sorry cannot respond to inbox messages still very confused
thankyou so much had a major meltdown today 1st time Ive cried since being told, thankyou for just being there everybody x sorry cannot respond to inbox messages still very confused
Don't worry about the inbox messages seagull. I'm just pleased you found your own messages /posts and the replies you received from others.
Sorry about your meltdown. It's so understandable.
I hope you will find the support on Talking Point helps you feel you are not so alone.
Sorry about your meltdown. It's so understandable.
I hope you will find the support on Talking Point helps you feel you are not so alone.
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