Hello Jane
I think the key fact is that that you and your mum are in Scotland. As far as we have been able to determine the assessment process for NHS continuing care is very much in the development stage. Jennifer has pinpointed the relevant legislation much of which mirrors the national framework in England. The difference is that there is no national decision-making tool although the legislation states that an additional assessment tool within the single shared assessment approach
will be developed and piloted. As far as our experience shows, this results in NHS Health Boards unfairly adopting very different approaches.
My MIL is just 65 and has been on an organic dementia assessment ward of the local mental health hospital for 14 weeks. During this time and the preceeding couple of months in an EMI Nursing Home, she has been prescribed an almost unbelievable 4 different types of antipsychotic medication - amilsulpride, quetiapine, risperidone and now aripiprazole. Despite this my MIL is still verbally and physically aggressive, can be very agitated and distressed and is constantly pacing restlessly. Unfortunately, the consultant believes that my MIL has been at the severe stage for at least a year and her memory and cognitive abilities are almost non-existant. Communication is also very very limited. She has been on the latest medication for 3 weeks and unfortunately this does not appear to be having any calming effect to date. I should also mention that my MIL is also prescribed an antidepressent, diazepam and temazepam and night sedation so is tolerating a huge cocktail of drugs which we are concerned about. We have no doubt that she has been over-medicated and became doubly incontinent, lost the ability to eat independently and developed a significant stoop whilst taking risperidone. Thankfully, all the above have improved to a greater or lesser extent since stopping the risperidone.
In spite of my MIL's lack of stability and continued challenging behaviour on the ward my husband and I are repeatedly asked (harrassed) by the staff how we are getting on in terms of identifying a new Nursing Home. In our NHS area there appears to be no process of assessment. We have asked for my MIL's health care needs to be assessed against the local criteria in line with the 2008 legislation and have been met with a brick wall. The consultant maintains that there is no such thing as cradle to grave care under the NHS and the Care Manager has stated that my MIL "owns her own house". Within the system as it stands our only recourse will be to appeal to the Director of Public Health of our Health Board when the consultant declares my MIL fit to be discharged.
In my research I have come aross a report produced by ISD Scotland detailing numbers of Continuing Care patients by NHS Health Board and health specialty. Here is the link which may be of interest to you
http://www.isdscotland.org/isd/5910.html