I was going to post this as a reply in another thread but I did not want to hijack it so making a new one...
I am not sure how standard my experience is, but I managed to go to an appointment with Mums GP with her for an unrelated matter and Mum was showing a little signs of confusion at the appointment, and because I had been with her at the appointment, the GPs practice then allowed me to speak to her dr on the phone about the problems and such like. They said, we know you, you are involved in your Mum's care. I also put it all in writing , and I had an advocate for myself write to Mum's GP about the effect the dementia was having on me.
Because Mum refused help from anyone else but me and often said if she had to go into a care home she would kill herself, it was very difficult and took a long time to get help. She refused almost everything. She would only let the community psychiatric nurse visit because she had weighing scales with her and weighed Mum on the home visits.
I am not sure how standard my experience is, but I managed to go to an appointment with Mums GP with her for an unrelated matter and Mum was showing a little signs of confusion at the appointment, and because I had been with her at the appointment, the GPs practice then allowed me to speak to her dr on the phone about the problems and such like. They said, we know you, you are involved in your Mum's care. I also put it all in writing , and I had an advocate for myself write to Mum's GP about the effect the dementia was having on me.
Because Mum refused help from anyone else but me and often said if she had to go into a care home she would kill herself, it was very difficult and took a long time to get help. She refused almost everything. She would only let the community psychiatric nurse visit because she had weighing scales with her and weighed Mum on the home visits.