Dads in hospital very ill possibly eol

[Jessbow]

OK, so have physio just not done any with him, or have they withdrawn? ( Too poorly/not co-operative/forgets/cant understand instruction)

If he is getting/trying to get from chair to bed, is it because he wants to be in bed? Presumably he is better sat in chair for mealtimes- less chance of aspirating

 

[deepetshopboy]

Came Monday Tuesday wen. Not came bc back yesterday n today so far
Yesterday in chair today in chair
Stil on antibiotics and possibly on drip pending drs decision
Eating bit better but bloods not good inflammation up pneumonia not cleared n saying hes going keep aspriring n next monday /Tuesday possibly wont start giving more drugs as hes not responding n will keep aspiratiing if he doesn’t pick up by Tuesday they going have a meeting about not to treat

 

[canary]

Eating bit better but bloods not good inflammation up pneumonia not cleared n saying hes going keep aspriring n next monday /Tuesday possibly wont start giving more drugs as hes not responding n will keep aspiratiing if he doesn’t pick up by Tuesday they going have a meeting about not to treat

Im sorry

I expect the physio is waiting to hear the outcome too.

 

[jennifer1967]

can you go to the meeting? with nan, they got family members in to discuss what to do next.

 

[deepetshopboy]

Im sorry

I expect the physio is waiting to hear the outcome too.

They came but didn’t do much just tried walking him from chair

 

[Jessbow]

Came Monday Tuesday wen. Not came bc back yesterday n today so far
Yesterday in chair today in chair
Stil on antibiotics and possibly on drip pending drs decision
Eating bit better but bloods not good inflammation up pneumonia not cleared n saying hes going keep aspriring n next monday /Tuesday possibly wont start giving more drugs as hes not responding n will keep aspiratiing if he doesn’t pick up by Tuesday they going have a meeting about not to treat

Things is, its a battle when he's eating and drinking if food and drink is ending up in his lungs.

Do you agre the kindest thing is to stop treatment, let him live out ''However long'' in peace? Hopefully they can move him somewhere nicer/Quieter , perhapsa nursing home or even a hsopice?

thinking of you

 

[deepetshopboy]

Things is, its a battle when he's eating and drinking if food and drink is ending up in his lungs.

Do you agre the kindest thing is to stop treatment, let him live out ''However long'' in peace? Hopefully they can move him somewhere nicer/Quieter , perhapsa nursing home or even a hsopice?

thinking of you

If they stop treating it he wont last long as pneumonia will take over? Dont think he will have long
And the only hospice is marie curie near us thats for cancer ?

 

[MaNaAk]

Dear @deepetshopboy,

I just want you to know that I'm thinking about you and your dad.

MaNaAk

 

[CAL Y]

If they stop treating it he wont last long as pneumonia will take over? Dont think he will have long
And the only hospice is marie curie near us thats for cancer ?

I could be wrong but I think Marie Curie caters for patients other than those with cancer.
In his last couple of weeks we had some night sitters from Marie Curie, organised by the local Hospiscare service.

 

[CAL Y]

I could be wrong but I think Marie Curie caters for patients other than those with cancer.
In his last couple of weeks we had some night sitters from Marie Curie, organised by the local Hospiscare service.

That should read, My Husband in his last weeks.

 

[jennifer1967]

That should read, My Husband in his last weeks.

i have just looked it up and they are there for terminally ill people. no mention about cancer only. macmillan nurses are for cancer.

 

[deepetshopboy]

Dear @deepetshopboy,

I just want you to know that I'm thinking about you and your dad.

MaNaAk

Thank you x

 

[deepetshopboy]

i have just looked it up and they are there for terminally ill people. no mention about cancer only. macmillan nurses are for cancer.

Ok that might be a option today dads better eating better wahed him very restless so might be coming back from brink again maybe heaven not quite ready for him hes a big handful and a terror at times

 

[Jessbow]

How is he now?

 

[deepetshopboy]

He’s getting’ better ‘ the bloods are still showing pneumonia but dr said this morning it will always be there
He’s eating better n gained weight no drips still on antibiotics
But hospital again want him out
What i don’t understand is and its a complicated
Is they said they might not treat if further episodes of pneumonia then says now hes pallative he needs pallative care hes only got 1.2 6 months left ? I don’t understand they want him home /nursing home
They also want to discharge about ‘ no care ‘ie if he became ill in nursing home /home they would not call the ambulance no treatment ie i said if he breaks he leg your saying your putting on hes records no treatment hes saying will have no benefit to it i can’t understand still dont i had a conversation last wk with different dr about the pneumonia n treatment being withdrawn but didn’t extend to the future? How can he be left woth broken leg in a nursing home or home ( for example) n not be treated?
Why is the pallative care team going be involved i find it frustrating i can’t understand what the dr was saying why would he be pallative

 

[canary]

the bloods are still showing pneumonia but dr said this morning it will always be there

I think that what they are saying is that he is not responding to the antibiotics and so will not recover completely from the pneumonia - the disease will be rumbling around his body, but it might take up to 6 months for him to succumb. He will not have any active treatment, but will be given painkillers and "comfort care"

 

[deepetshopboy]

I think that what they are saying is that he is not responding to the antibiotics and so will not recover completely from the pneumonia - the disease will be rumbling around his body, but it might take up to 6 months for him to succumb. He will not have any active treatment, but will be given painkillers and "comfort care"

Ok ..but they are saying something about a advance directive n wouldn’t treat brakes etc i said no how would you expect a care home or myself not to call a ambulance?

 

[Duggies-girl]

@deepetshopboy My dad was under a palliative care team for two years. Yes comfort care is a good name, my dad could have anything to keep him comfortable, this included stents for his oesophageal cancer so that he could eat, antibiotics when he had pneumonia, blood transfusions and iron infusions to keep him feeling well. He was terminal so no point in giving him an operation that probably would have killed him anyway and no point in giving him chemo as it would have made him very ill due to his frail state at the time.

Dads prognosis was very poor but he managed to last two years with only palliative care and he did very well on it. Your dad sounds very determined so don't be surprised if he lasts longer than they expect.

I would expect the care/nursing home will know about an advance directive and how it works. I hope they get it all sorted out soon so he can get out of the hospital and you can get some rest..

 

[deepetshopboy]

Did your dad go to a nursing home or home
The thing is he hasn’t got cancer qnd dementia has declined yes due to all the stress /illness /delruim but they are saying hes swallow is gone it hasnt he’s eating ok and never went prior and saying hes not gojng to walk again anyway how the heck do they know making all these assumptions and saying that a ambulance wont come if he brakes hes leg etc do they think the palliative care team will come to a nursing home /home in the middle of the night
And they are saying he wont be treated with antibiotics

 

[Jessbow]

Palliative care will be there 24/7- its nott a special team of nurses, just that his care will be palliative.

Palliative care is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of the illness. The goal is to improve quality of life for both the patient and the family.

Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together with a patient’s other doctors to provide an extra layer of support. Palliative care is based on the needs of the patient, not on the patient’s prognosis. It is appropriate at any age and at any stage in a serious illness,

He wont recieve any more antibiotics for his Pneumonia- they have ceased to work, they will now help him live out whatever time he has left , keping him as comfortable as possible.

hs swallow HAS gone- in the food is now entering his lungs rather than/as well as his stomach- he is no longer swallowing correctly.

if he was enfortunate enough to say break his leg, they would simply plaster it if they kept him comfortable.

His life is coming to an end, its hard, but there comes a pointthat in fairness to him, this has to be the case- look how he has struggled the last few weeks