Hi @feralcoleHi everyone, just wondering how many people here have actually had success in securing CHC funding for someone with advanced Alzheimer's?
If my Mum didn't have 24/7 care and people to essentially do absolutely everything for her, she would die - that seems pretty much a Primary Heathcare Need to me. She has other complications - Osetoporosis and Menieres Disease (constant vertigo), very bad mobility from a fractured hip - but nothing that means she needs an actual nurse looking after her. I have read that CHC is rarely awarded unless someone is on feeding tubes, need a nurse to look after them etc. We did apply at the start of the year and got turned down, but we did get awarded FNC should she move to a care home.
Would be interested to hear your feedback
CHC funding has become a very contentious issue and upon taking two seperate legal advisors view they both felt the CHC have thier own agenda in how they distribute funding regardless of the clear guidance, they seem to either downgrade applications or just simply ignore facts that will include people for CHC. This is after my mum being granted CHC funding for twelve months and then on the new financial year it being very quickly and very questionably removed. I can't comment on my mums case any further as it is currently under appeal and legally challenged.
More recently was a move to seek judicial review which was declined not on the principal of the appeal but purely on the technicalities of application. The overriding review judges remarks are worthy of reading because in it he essentially supported the claim although he could not support the grounds of application for judical review on that particular application.
The Rt. Hon. Lord Justice Bean said this - a staggering statement when stating: "I note that the Public Accounts Committee (PAC) has found that there are systemic failures in the funding of patients with continuing healthcare needs. If they and the Clamant (sic) are right, the remedy is in the political sphere, not the courts".