It occurs to me that a lot of research is done unto the 'dementia community', and there seem to be a lot of people deciding that XYZ is a great idea to help people living with neurodegenerative diseases.
This thought has been spurred on by me starting to fill out a questionnaire online and then realising that I couldn't fit my position and condition into the yes/no boxes provided. Do I have a diagnosis? Well, sort of....
But what research do those of us with dementia - and our carers - think would really help? What are the issues we want to know more about, and what are the problems (no matter how mundane) that we want solved?
I have a sneaking suspicion that there are some issues that are so commonplace that they just get overlooked - someone might have a solution, but there again maybe one has as yet never been found - or even looked for.
Ideas?
This thought has been spurred on by me starting to fill out a questionnaire online and then realising that I couldn't fit my position and condition into the yes/no boxes provided. Do I have a diagnosis? Well, sort of....
But what research do those of us with dementia - and our carers - think would really help? What are the issues we want to know more about, and what are the problems (no matter how mundane) that we want solved?
I have a sneaking suspicion that there are some issues that are so commonplace that they just get overlooked - someone might have a solution, but there again maybe one has as yet never been found - or even looked for.
Ideas?