So, here I am. As with a previous post, not really sure where to start, but I just felt it was time that I reached out to others in the same boat.
My husband was diagnosed with early onset AZ (mild to moderate) at the age of 64. It wasn't a total shock to me as I'd thought things weren't quite right for a little while, but still it's a hard message to hear. We put POA etc. in place so that's all sorted and planned to do lots of activities whilst we still could (until Covid of course scuppered our plans for this year). I'm keeping my fingers crossed for 2021 as it's so hard not knowing the answer to 'how long before......?' and 'will he still be OK in....?'
In reality, he is still good humored about it and happy, but as we're now two years on I'm starting to notice more changes. He has taken Mementine and Donepezil since diagnosis which have hopefully delayed the progression as much as possible.
From my perspective, I try and keep calm and patient (when inside I'm far from it) when things happen. The hardest thing is knowing that it's only going to get worse and in reality I'm so near the beginning of this journey that I worry if I'm like this now, what will I be like in 3/5 years time. AZ and the menopause is not a good combination it must also be said
Anyway I guess I just wanted to write something down as sometimes just doing that makes life feel a little bit better. Thanks for listening.
My husband was diagnosed with early onset AZ (mild to moderate) at the age of 64. It wasn't a total shock to me as I'd thought things weren't quite right for a little while, but still it's a hard message to hear. We put POA etc. in place so that's all sorted and planned to do lots of activities whilst we still could (until Covid of course scuppered our plans for this year). I'm keeping my fingers crossed for 2021 as it's so hard not knowing the answer to 'how long before......?' and 'will he still be OK in....?'
In reality, he is still good humored about it and happy, but as we're now two years on I'm starting to notice more changes. He has taken Mementine and Donepezil since diagnosis which have hopefully delayed the progression as much as possible.
From my perspective, I try and keep calm and patient (when inside I'm far from it) when things happen. The hardest thing is knowing that it's only going to get worse and in reality I'm so near the beginning of this journey that I worry if I'm like this now, what will I be like in 3/5 years time. AZ and the menopause is not a good combination it must also be said
Anyway I guess I just wanted to write something down as sometimes just doing that makes life feel a little bit better. Thanks for listening.