Hi
@Jake New
I am sorry to read about your news.
If your mum is nearing end of life, I would ask that IV fluids are stopped as they serve no purpose other than prolong the dying stage and also allow your mum to 'taste for pleasure' rather than keep her nil by mouth. I was clear about this when my dad was dying and I have also been clear about it with my mum who is now also entering the end stage of dementia.
Getting your mum home will require a lot of help in getting her there and also caring for her when at home, so if that's your wish then you need to raise this and see what can be done to achieve it. I also wish the same thing, but I can't provide the level of care mums unit can -and thats something you do need to think about. I'm not aware of any hospice care in the UK for end stage dementia, but I could be wrong. I know in the USA such hospices do exist.
Thank you
I will discuss the taste thing that sounds interesting.
Yes I.V fluids will be stopping when all is sorted for getting her home. Hoping tomorrow or the next day.
I am truly blessed that here in N. Ireland we do have a fantastic care plan in place. With 2 carers coming in 5 times a day to do the physical care.
As I have Lupus and fibromyalgia I am limited on what I can do. ( I can do lots but have to limit physical as I do pay for it later, if that makes sense). I can do more the company thing. Keeping her safe entertained, making her feel secure, talk about old memories hold her hand that side of things.
Also now that we have protective bubble situation where family members can visit. Other family members will be able to come in and visit and allow me to get a break. My husband a d daughter are here with us too so they can sit s spell to get a wee break.
Marie Curie will hopefully be able to offer a few night sits. So I can go get some sleep. I do have a bed in my mums room so can lie down in with her and rest too. My daughter takes a turn and sleeps in with her too. So hopefully it will be doable.
My sister got in to visit yesterday Mon 6th 1st visit allowed since she was admitted 3 weeks ago for an ongoing UTI and I am going today. CANNOT WAIT TO SEE HER. SO HAPPY ?
Yes there is hospice care as it was offered but not sure were it is.
At the minute she is content and comfortable so hoping we can share her last days with her as a family and it will be a peaceful end.
Community palliative care will come to the house and sort a pain driver to administer all meds that are needed to keep her comfortable. They will sort mouth care swabs and anything else that she will need.
We need to get a hoist but the social services will sort that out.
So all in all we have things pretty planned out. Once we get the hoist and things all in place, ambulance will bring her home. It is all in the man above hands and I have made my peace with it now.
Thank you again for your advice. I will be keeping you in my thoughts and prayers.