I have a meeting with my 95 year olds Grand mothers private nursing home tomorrow morning and at this time of day, are struggling to get some facts that I am hoping to use, to support and protect my Grandmother from being kicked out on her ear!
In summary, she was admitted in June 2019 straight from hospital following a broken leg. She was diagnosed with early onset of dementia in 2015 and was becoming institutionalised at the local hospital following the repair to her femur. The private nursing home assessed her, and said that she had a place, great we thought. Everything has been excellent until recently, now she has deterioration over recent weeks and they want her out out out.
Prior to this: On December 19th 2019, a CHC was done following a change in her needs. My mother and I attended a meeting with a senior nurse and she attained two A's, which we were advised meant she would reach the next level of assessment. We were told that as it was so close to Xmas there would be a slight delay. About 2 days after this assessment, my grandmother had her first 'episode'. She was put into bed, (normally in a wheelchair) sides up, where she screamed, shouted and threw stuff. She would n't listen to anyone (she is also French and deaf!) not even my mother or I could calm her. After a day or so, she eventually crashed, slept solid for a few days (with exhaustion!) and resumed her previous demeanour when she awoke. Refusing food, and very weak though.
On December 22 my mother visited her, when on signing in, the house manager publicly approached my mother (infront of staff and visitos) and asked my mother if the senior nurse had spoken to her and that she needs to find another care home due to the complaints from residents and their families. My mother was shocked, upset, concerned on the effect that this would have on my gran, but also how unprofessional it was.
I visited the next day, my gran was calm, and I went to she Senior nurse and asked him to clarify what was that conversation that was casually broached in the reception the day before. His exact words, go and enjoy Christmas, but in the New Year, she has to go to a specialist dementia unit, where they can care for her.
At this point, I'm thinking, why did they take her on, knowing that she had the condition, it was only going to get worse. And moving her now, and at her age, would be a huge upheaval. But as she had calmed down, and picked up remarkably over the Christmas period, we assumed that this was perhaps an underlying UTI, which she frequently gets. Nothing more was said.
Until last Monday 6th January, on visiting her, she seemed irritated again, and was in bed, cotted up again. She'd been 'shouty' according to the Senior Nurse. She told me they didn't like her French loud voice! As my mother and I were leaving, the Senior nurse asked if we could arrange a meeting with both mum and I with the House Manager. As we knew what this was likely to be about, we started the trawling the internet for homes. By Wednesday morning,my mother had a call. She was having another episode, they want to charge us for a nurse to sit with her....but we are already paying for a 24 hour nursing home, you want more money on top of the £1600 per week......and come to think of it, what's going on with the CHC.
By Wednesday night, my gran was still howling, they told us that they called the Doc. By Thursday morning, she hadn't calmed down at all. We called again and home said that they can't do anything for her. Each time making sure that we were in ear shot of the howling. They refused to sedate her as it wasn't ethical, even though my mum has power of attorney, and said it was in her best interest.
My mum called the GP surgery Thursday morning. They hadn't been called on the Wednesday! SHe asked if they could go and assist ASAP. On Thursday pm, we called the home again, each time making sure my gran is in ear shot, howling. The doc couldn't do anything they said! Once again, mum called the Docs. They advised that infact they had left diazepam and antibiotics for an underlying UTI. Why didn't the home state this when we enquired, why lie about that the doc had been, when they hadn't called them?
Thursday afternoon, we asked the care home for a copy of the contract, presumably we get 28 days notice to find her another home? By then hopefully we'll have the CHC completed. We called the local CCG, they advised that no CHC has been received! We call Beacon for advice, they advised to not move Gran until CHC is completed, they said it sounds like she would qualify. We were advised to escalate to fastrack, due to her rapid deterioration and that it would be in her best interests. We duly sent an email to the Senior Nurse requesting this on Thursday afternoon, and then called to make a meeting with the House Manager for the next day. She couldn't make Friday, and then said, that she didn't think we needed a meeting anymore! I think we do.
So, (if your still with me) sorry its so long....
They have not responded to our request to fast track the CHC and CCG have advised today, that there is still no CHC (fastrack or otherwise) (today being 13/01/2020)
Mum found her contract, they state that they only have to give 48 hours written notice if the patient is aggressive and violent (well as much as a 6 stone 95 year incapacitated, dementia ridden French, deaf woman can be from her cotted bed!) We've not had this in writing yet, but I expect we'll get it tomorrow at the meeting.
Do we have the right to stay put, until they complete the CHC? (Backdated to 19/12)
Sorry its such a long one....I called round today to try to get some advice, but going from pillar to post, the last number given for advise closed their lines at 4.45....
Grateful for any information or advice you can offer at this last stage.
Many many thanks
E
In summary, she was admitted in June 2019 straight from hospital following a broken leg. She was diagnosed with early onset of dementia in 2015 and was becoming institutionalised at the local hospital following the repair to her femur. The private nursing home assessed her, and said that she had a place, great we thought. Everything has been excellent until recently, now she has deterioration over recent weeks and they want her out out out.
Prior to this: On December 19th 2019, a CHC was done following a change in her needs. My mother and I attended a meeting with a senior nurse and she attained two A's, which we were advised meant she would reach the next level of assessment. We were told that as it was so close to Xmas there would be a slight delay. About 2 days after this assessment, my grandmother had her first 'episode'. She was put into bed, (normally in a wheelchair) sides up, where she screamed, shouted and threw stuff. She would n't listen to anyone (she is also French and deaf!) not even my mother or I could calm her. After a day or so, she eventually crashed, slept solid for a few days (with exhaustion!) and resumed her previous demeanour when she awoke. Refusing food, and very weak though.
On December 22 my mother visited her, when on signing in, the house manager publicly approached my mother (infront of staff and visitos) and asked my mother if the senior nurse had spoken to her and that she needs to find another care home due to the complaints from residents and their families. My mother was shocked, upset, concerned on the effect that this would have on my gran, but also how unprofessional it was.
I visited the next day, my gran was calm, and I went to she Senior nurse and asked him to clarify what was that conversation that was casually broached in the reception the day before. His exact words, go and enjoy Christmas, but in the New Year, she has to go to a specialist dementia unit, where they can care for her.
At this point, I'm thinking, why did they take her on, knowing that she had the condition, it was only going to get worse. And moving her now, and at her age, would be a huge upheaval. But as she had calmed down, and picked up remarkably over the Christmas period, we assumed that this was perhaps an underlying UTI, which she frequently gets. Nothing more was said.
Until last Monday 6th January, on visiting her, she seemed irritated again, and was in bed, cotted up again. She'd been 'shouty' according to the Senior Nurse. She told me they didn't like her French loud voice! As my mother and I were leaving, the Senior nurse asked if we could arrange a meeting with both mum and I with the House Manager. As we knew what this was likely to be about, we started the trawling the internet for homes. By Wednesday morning,my mother had a call. She was having another episode, they want to charge us for a nurse to sit with her....but we are already paying for a 24 hour nursing home, you want more money on top of the £1600 per week......and come to think of it, what's going on with the CHC.
By Wednesday night, my gran was still howling, they told us that they called the Doc. By Thursday morning, she hadn't calmed down at all. We called again and home said that they can't do anything for her. Each time making sure that we were in ear shot of the howling. They refused to sedate her as it wasn't ethical, even though my mum has power of attorney, and said it was in her best interest.
My mum called the GP surgery Thursday morning. They hadn't been called on the Wednesday! SHe asked if they could go and assist ASAP. On Thursday pm, we called the home again, each time making sure my gran is in ear shot, howling. The doc couldn't do anything they said! Once again, mum called the Docs. They advised that infact they had left diazepam and antibiotics for an underlying UTI. Why didn't the home state this when we enquired, why lie about that the doc had been, when they hadn't called them?
Thursday afternoon, we asked the care home for a copy of the contract, presumably we get 28 days notice to find her another home? By then hopefully we'll have the CHC completed. We called the local CCG, they advised that no CHC has been received! We call Beacon for advice, they advised to not move Gran until CHC is completed, they said it sounds like she would qualify. We were advised to escalate to fastrack, due to her rapid deterioration and that it would be in her best interests. We duly sent an email to the Senior Nurse requesting this on Thursday afternoon, and then called to make a meeting with the House Manager for the next day. She couldn't make Friday, and then said, that she didn't think we needed a meeting anymore! I think we do.
So, (if your still with me) sorry its so long....
They have not responded to our request to fast track the CHC and CCG have advised today, that there is still no CHC (fastrack or otherwise) (today being 13/01/2020)
Mum found her contract, they state that they only have to give 48 hours written notice if the patient is aggressive and violent (well as much as a 6 stone 95 year incapacitated, dementia ridden French, deaf woman can be from her cotted bed!) We've not had this in writing yet, but I expect we'll get it tomorrow at the meeting.
Do we have the right to stay put, until they complete the CHC? (Backdated to 19/12)
Sorry its such a long one....I called round today to try to get some advice, but going from pillar to post, the last number given for advise closed their lines at 4.45....
Grateful for any information or advice you can offer at this last stage.
Many many thanks
E
