Hi. My o/h was diagnosed with AD in 2016. He seemed to decline quite gently and in feb 2019 scored 76 on the Addenbrookes ace, so not a massive decline.
Then everything suddenly went wrong. I had to take his car off him in feb because he was suddenly really erratic, he has become psychotic, paranoid, anxious, he paces, itches, he started being picked up miles away from home. I got his urine tested but that was clear.
A psychiatrist has seen him but didn't give any idea what was happening or why.
They did the addenbrookes test again this week. 56 points. He has deteriorated by 20 points in 9 months.
No one will tell me if this is normal, if he loses capacity at this rate how long does he even have left?
I know that no one really knows, has anyone had similar experiences?
Then everything suddenly went wrong. I had to take his car off him in feb because he was suddenly really erratic, he has become psychotic, paranoid, anxious, he paces, itches, he started being picked up miles away from home. I got his urine tested but that was clear.
A psychiatrist has seen him but didn't give any idea what was happening or why.
They did the addenbrookes test again this week. 56 points. He has deteriorated by 20 points in 9 months.
No one will tell me if this is normal, if he loses capacity at this rate how long does he even have left?
I know that no one really knows, has anyone had similar experiences?