[ I am in such a quandary, my thoughts at the moment are to bring her home and have day care 3 or 4 days a week to combat the loneliness (she has been going 1 day a week for the past 9 months and enjoys it) then fetch her to my house until evening, take her home and settle her to bed. My son has said he will stay with her 2 or 3 nights to help out. Has anyone else tried this angle. My head is all over the place just now, I am so mixed up.
you need to think hard before you do this. just because she had company yesterday/3 days a week/an hour ago/daytime/evening I dont think its ever enough if they need company in the moment. Often the person doesn't have the memory to hold that someone has been with them all day. just the 'now' that they are on their own and lonely NOW. What is given is never enough. mostly as the don't retain it.
its also to do with the overwhelming fear they often have. something is wrong but unsure what....creates fear and worry and being alone/lonely is the biggest thing they can articulate into the moment. someone being there can 'fix' the worry ......the need becomes 24/7[/QUOTE]
Thanks. I totally understand what you are saying, I want to do what is right for Mum and in my heart I know the CH is not the answer at the moment. I am trying to formulate a plan whereby I can give 24 hour cover. On paper it is workable as my daughter and son say they will help out. Day care is the big issue but I am arranging meeting with care worker this week. On a positive note, when Mum goes to sleep, nothing wakes her up, or hasn't yet... it must be an awfully scary world to live in fear, such a cruel illness.