I have set this up as a new thread in the hope that it will help show the sheer number of people who are at their wits end as carer's of PWD.
We all care "too much" and are hamstrung by the law which correctly allows people to make decisions about their health and well being, but does not really allow for as a previous post said "fluctuating capacity" . This dreadful disease leaves our loved ones to appear "normal" in short spurts (although I have noted that this is exhausting for PWD), whilst being anything but "normal" .
MIL presses her emergency call button constantly, OPMH have said they can't medicate her anxiety anymore, SS won't step in as she is self funding and has carer's 4 times a day but won't consent to an assessment for safety at home, the emergency call providers have just given us 2 weeks notice that they will remove the equipment as it is "being abused" and taking their call staff away from genuine calls, SS have asked the GP to carry out a capacity assessment. She has only been MIL's GP for a couple of months following the retirement of her previous GP who had known for at least 20 years and could see through her, but the GP only works part time so I have just had to leave a message with the surgery asking for the assessment to be done as a priority, but probably won't be looked at now until lunchtime tomorrow, so that will be a day and half gone of the 2 weeks. As the emergency button is MIL's only means of contacting the outside world as she can't use the phone to phone out (macular degeneration) she will be distraught and even more anxious, if that is possible.
She has refused constantly over the last 4.5 years that we have cared for her to engage in any sort of outside activity that would leave her less isolated - Age Concern, RNIB, her Care Providers, GP Surgery Memory Café etc.
Not looking for advice, just relieved to have been able to vent in an environment where others will understand. She really would be better in a home, better care, not isolated, better food, quicker intervention for medical issues, no worries about stairs, clean clothes and hopefully clean in herself, but as she is still deemed to have capacity and will not even tolerate discussion of moving out of her home we are stuck in this groundhog day situation.
We all care "too much" and are hamstrung by the law which correctly allows people to make decisions about their health and well being, but does not really allow for as a previous post said "fluctuating capacity" . This dreadful disease leaves our loved ones to appear "normal" in short spurts (although I have noted that this is exhausting for PWD), whilst being anything but "normal" .
MIL presses her emergency call button constantly, OPMH have said they can't medicate her anxiety anymore, SS won't step in as she is self funding and has carer's 4 times a day but won't consent to an assessment for safety at home, the emergency call providers have just given us 2 weeks notice that they will remove the equipment as it is "being abused" and taking their call staff away from genuine calls, SS have asked the GP to carry out a capacity assessment. She has only been MIL's GP for a couple of months following the retirement of her previous GP who had known for at least 20 years and could see through her, but the GP only works part time so I have just had to leave a message with the surgery asking for the assessment to be done as a priority, but probably won't be looked at now until lunchtime tomorrow, so that will be a day and half gone of the 2 weeks. As the emergency button is MIL's only means of contacting the outside world as she can't use the phone to phone out (macular degeneration) she will be distraught and even more anxious, if that is possible.
She has refused constantly over the last 4.5 years that we have cared for her to engage in any sort of outside activity that would leave her less isolated - Age Concern, RNIB, her Care Providers, GP Surgery Memory Café etc.
Not looking for advice, just relieved to have been able to vent in an environment where others will understand. She really would be better in a home, better care, not isolated, better food, quicker intervention for medical issues, no worries about stairs, clean clothes and hopefully clean in herself, but as she is still deemed to have capacity and will not even tolerate discussion of moving out of her home we are stuck in this groundhog day situation.