After 3 years of investigation and tests my husband was diagnosed with Lewy Body Dementia 6 months ago , his health has deteriorated rapidly over the last year and he ticks every single box for LBD I’ve read all I can and been horrified at the course it takes but not told any of this to my husband . Every day/ week seems to bring something new and different to tick off until I had just about a complete list of most things lbd patients experience . Just recently however he had a DatScan and apparently this didn’t show the take up of the dye that it would have with LBD , So the consultant is talking about changing the diagnosis to unspecified dementia . This is where I’m confused and scared if EVERY box is ticked for LBD how can I just turn a blind eye to it , when in the last 6 months I’ve spent time learning about it and know that it can be one of the most rapidly declining dementias out there with terrible physical illnesses added in there . If I ignore this and his life is shortened more so than any other dementia I will feel like I’ve been robbed of special time with him because we’ve not said our last goodbyes not planned and plotted how the future goes etc . From knowing how life was going to be , and don’t get me wrong I didn’t want LBD. ( I’ve cried and screamed day after day ) to not knowing what , how , when , why ,,,again is seriously sending me more than a little crazy . Does anyone have any light they can shed on Unspecified Dementia please . Thank you for listening xx julie. X